My Multiple Sclerosis Life is Filled with Seasons of Change

MS changes

By Penelope Conway

This morning I made an absolute mess of things. I was making my morning coffee, and for the umpteenth time, I spilled the coffee grounds all over the floor and myself because my hands fumbled and wouldn’t cooperate. I cleaned myself up and turned the coffee pot on so it could brew me a cup, but left the mess all over the floor for later.

As I’m writing this, I’m sipping on a freshly brewed cup of coffee while sitting in my bed knowing that there’s a mess in the kitchen waiting for me to tackle, but do you know what? Continue reading

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MS Humor, Maybe.

By Lauren Kovacs

Funny, not so funny. I know MS is really a mean demon. It tries to throw peanuts at you like a demented circus clown. I hate clowns.

Try and find humor in it, where you can.  Be silly.  Wear what you want, for example.  Try and do what makes your moment.  MS changes all day.

I can only wear certain sneakers. I like silly sneakers. Being in kids shoes, I wear whatever ones I like. The ones with lights are not yet in my closet. I have some dignity; however, I love my pink polka dot Chucks and my Sketchers with sparkles.

I do have some adult-restraint on apparel, but not too much. I wear only pull-on shorts/pants now. I kinda had a funeral for my button shorts/pants. Go crazy. There is little control with MS. Control your wardrobe. I am not saying wear big red floppy shoes and an orange wig, but have some fun.

Laugh at yourself. I fell at the doctor’s office recently. I jumped up and shouted, “I’m ok!” I didn’t really jump. I kind of slither up my walker. The only thing was a wee bump on my ego. Chocolate is great at ego repairs, too.

I once told a MRI technician that my lesions light up like a Christmas tree and I recommend he wear sunglasses. When he had to stick me eight times for the IV, I could not find any humor in that. I do not identify well as a pin cushion, and then spending almost two hours in a Pringles can they call a MRI was not funny.

Find humor in MS. Laughter is the best medicine, they say. I have to use a life vest in my own pool now. I call it buoy training. I have very little control in the water now. I would be a floating chicken nugget for a shark, if I was in the ocean.

MS can be very depressing. It is like MS jail. I had to turn in all my talents, before the life-long stay. Heck, I had to turn in my coordination, too. Trying to drink grapefruit juice out of a cup ended up on my face and in my hair. That hand earthquake left me with a burning eyeball. Make light of stuff.

Laugh off your quirks, when you can. If you laugh at yourself, it helps you and others move on. I know MS is mean and a thief. Making light of most MS incidents can help you not to dwell on the MS monster as much.

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