Pediatric MS – The Motivator

Pediatric MSThe Multiple Sclerosis Association of America is proud to introduce the latest edition of The Motivator, available now in both print and digital editions! The edition’s cover story, “Pediatric MS,” explores how pediatric MS differs from MS in adults, how it is diagnosed and treated, and how social and emotional well-being is promoted.

Read an excerpt from our cover story here: Continue reading

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Planning for Your Financial Future

Planning for Your Financial Future from The MotivatorWe at MSAA are proud to introduce the latest edition of The Motivator, which is available now in both print and digital editions! This edition’s cover story is “Planning for Your Future.” This story defines the legal and financial decisions and documents you may need to consider when planning for your financial future, particularly if you are living with a chronic condition.

Read an excerpt from the cover story here: Continue reading

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Read All About It: MSAA’s Newest Publications

Recently, the Multiple Sclerosis Association of America proudly published two new publications: the Winter/Spring 2018 Edition of The Motivator, and the 2018 MS Research Update.

This newest edition of The Motivator features the cover story, “Finding Direction When Newly Diagnosed,” which covers a range of topics including MS basics, treatment options, employment issues, government programs, and more.

The 2018 MS Research Update provides a comprehensive overview of study results on many of the approved and experimental disease-modifying therapies for MS, as well as highlights on new directions in MS research.

Read excerpts from these two publications here:

Continue reading

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Care of the Care Partner

For most people with a chronic disease like multiple sclerosis, the biggest piece of your support network is your care partner.  Care partners – whether they be a best friend, a spouse, a sibling, a parent, or other family member – are an essential part of any support network.  But like the people they care for, care partners need help and resources to care for themselves and prevent care partner burn out.

The Family Caregiver Alliance reports that 1 in 10 care partners has experienced a decline in physical health as a result of caregiving.  Due to the stress and daily struggles of life with a chronic disease, many care partners choose to spend their time and energy on their partner’s health and wellbeing, rather than their own.  Some small, but very important things that all care partners should do for themselves to prevent health decline are:

  • Make appointments with doctors and dentists for regular checkups and screenings.
  • Have routine medical testing done such as checking cholesterol levels, blood pressure, mammograms, or prostate exams.
  • Make sure to get enough sleep. It is much easier to focus on tasks of the day if you are well rested.
  • Maintain social interaction with friends and family who are important to you.
  • Make sure there is still some “me” time. If you have a hobby that you enjoy, be sure to keep up with it, even if only in small increments.

Most importantly, care partners should always feel comfortable asking for help.  Sometimes, one care partner is not enough and they need a break.  Sometimes, an individual with MS needs specific kinds of help that requires a specialist.  Resources are available for individuals with MS and their care partners for these situations, and many more.

To learn more about care partner resources, challenges, and care partner stories feel free to read over our cover story from the Summer/Fall 2014 edition of The Motivator, Care Partners: The People Who Make a Difference in Our Lives.

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Home and Lifestyle Modifications – New Edition of The Motivator

The Multiple Sclerosis Association of America is proud to introduce the latest edition of The Motivator, available now in both print and digital versions! This edition’s cover story, “Home and Lifestyle Modifications for Safety and Accessibility,” covers various strategies for better living at home – from strategically placed grab bars for safety, to building ramps and widening doorways for increased accessibility. Learn about easy DIY changes you can make, as well as tips on how to choose the right handyman to make any larger changes to your home.

Also included in this edition:

  • Organization updates from MSAA President and CEO, Gina Ross Murdoch
  • MSAA’s Chief Medical Consultant, Dr. Jack Burks, answers reader’s questions
  • MS research news updates, and much more!

Read an excerpt from our cover story here:


I remember skipping down the stairs and leaping over the baby gate at the bottom with my hands full of laundry. Then I’d run down another flight of steps to the basement to fill the washer before sprinting back up with the wet sheets. With one arm full of wet sheets and the other grasping my son, I’d jump down the back steps and hang the sheets on the clothesline. And that was all before breakfast.

I never dreamed that a few years later, I’d be stranded on my front landing, unable to get down the two steps without holding onto my husband. I certainly never imagined that I’d get stuck in my bathtub, unable to stand up without my husband to pull me out.

Over time, I found solutions to some of the obstacles I was experiencing. Some remedies were not difficult. For instance, I learned that showering was easier than taking a sit-down bath. When the time came that I needed to sit while bathing, I purchased a shower chair at a medical supply store. When the single railing on our inside staircase became too difficult for me to navigate, purchasing a second railing at a home-improvement store was a simple fix.


Continue reading the cover story at support.mymsaa.org/motivator to learn more about home and lifestyle modifications you can use to make your home more accessible.

 

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The Motivator: Winter/Spring 2017

Introducing MSAA’s newest edition of The Motivator, available now in both printed and digital versions!

Read about the following topics in the new Winter/Spring 2017 issue of The Motivator:

  • Cover Story:
    Disease Effects and Needs of Minority Populations with MS
    New findings on diagnosis, symptoms, disease course, treatment response, and access to care are among the many issues presented in this article.
  • Up Front:
    MSAA’s President and CEO Gina Ross Murdoch talks about new Board members, successful fundraisers, and exciting initiatives.
  • Research News:
    Details are given on Ocrevus™ (ocrelizumab), the first disease-modifying therapy to be approved for both relapsing forms of MS as well as primary-progressive MS.
  • Program Notes:
    MSAA’s MRI Access Fund is now fully restored and in full swing, providing much-needed MRI scans to individuals who otherwise could not afford this vital testing.
  • Stories to Inspire:
    Read about an individual’s recovery from severe depression and her newfound happiness.

Don’t Forget!
The new Winter/Spring 2017 issue of The Motivator is also available as a digital edition, providing: easy, interactive, online viewing; access from your desktop, tablet, or mobile device; and special features that include a search field, font-size preferences, and more!

*The Motivator is MSAA’s award-winning magazine provided to the MS community and to our generous supporters.

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Read the Latest Issue of The Motivator

Service Animals and MS – read the newest Summer/Fall 2016 issue of The Motivator, available now in print and digital editions.

motivator-sf16-spreadRead about the following articles in this issue of The Motivator:

Cover Story:
The Joys and Challenges of a Service Dog Partnership
Dr. Darbi Haynes-Lawrence takes readers along her eventful journey to partner with a service dog, encountering many benefits and hurdles along the way.

Up Front:
MSAA’s President and CEO Gina Ross Murdoch talks about record-breaking outreach, a new online community, and upcoming events to support MSAA’s vital programs and services.

Research News:
Information is given on newly approved Zinbryta™ (daclizumab) and two investigational medications, Ocrevus™ (ocrelizumab) and siponimod.

Read the latest issue at support.mymsaa.org/motivator.

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Relationships and MS – check out the new issue of The Motivator

Motivator_WS16_emailheaderThe latest issue of The Motivator is now available to order, download, or read the DIGITAL EDITION right on your desktop, tablet, or phone!

Included in this issue of The Motivator:

Cover Story:Motivator_WS16_digital_spread

Making the Most of Our Relationships: Helping ourselves and those around us to cope with MS

… From family and friends to employers and coworkers, the diagnosis of MS can impact how we interact and care for one another.
Read the full story

Research News:
… Information is provided on three investigational medications as they make their way toward FDA approval, two of which are being studied for progressive MS.
Read the full story

Up Front:
… MSAA’s new President and CEO Gina Ross Murdoch talks about her exciting role as well as important events at MSAA.
Read the full story

Program Notes:
… The launch of MSAA’s redesigned and responsive website, ways to stay informed, and MSAA’s new video on pseudobulbar affect (PBA), are featured.
Read the full story

Read the latest issue of The Motivator – and be sure to check out all of the interactive features in the NEW digital edition by clicking “View Digital Edition” on the page!

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MSAA Motivator: Wellness in Multiple Sclerosis

Motivator_Angela

MSAA’s latest edition of The Motivator features an updated design, with printed and digital versions available.

Included in this issue of The Motivator:

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  • Cover Story – Wellness in MS: How good food choices, exercise, correct posture, and other lifestyle changes can have a positive influence on your overall health.
  • Up Front – MSAA’s president and CEO gives a special message to readers, reflecting on his 16 years of service to MSAA.
  • Research News – Updates on recent news items occurring since the last issue of The Motivator are featured.
  • Program Notes – MSAA’s new aquatic fitness DVD, plus My Health Insurance Guide, are both highlighted.

Throughout the month of October, aligned with the release of latest edition of The Motivator, MSAA Client Services staff and guest bloggers will continue to highlight the impact that a wellness strategy can have on an individual with MS. Discussing topics such as diet and exercise, mental health, and social wellness, we hope to continue the conversation about wellness and learn from each other’s experiences.

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Latest Issue of The Motivator Now Available

The Winter/Spring 2015 issue of The Motivator is now available! Request your copy today or read it online with the all new digital edition! You can access the digital edition right from your desktop or mobile device and enjoy enhanced interactivity and special features such as tools to search for specific terms, change the font size, and add your own notes.

Motivator digital

Read about the following topics in MSAA’s latest issue of The Motivator:

Motivator Winter Spring 2015

Cover Story:

Cognitive Issues with MS: Research, Strategies, and Support

…A common symptom of MS, cognitive issues may impact many areas of one’s life, including employment, relationships, adherence to medications, and other activities of daily living. This article details current research into cognition and multiple sclerosis, while providing strategies and support for reducing the effects of this often-challenging symptom.

Read the full story

Stories to Inspire:

…Following a severe relapse, Tina was left with loss of vision in one eye, dizziness, and balance problems. She had no idea that seeing-eye dogs are also trained to help mobility and balance. With her service dog by her side, Tina is ready to conquer the world!

Read the full story

Program Notes:

…Updates on MSAA’s programs are featured, including the MRI Access Fund, details on how to request cooling accessories to relieve heat sensitivity, and more.

Read the full story

Read the latest issue of The Motivator – and be sure to check out the features in the NEW digital edition!

 

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