Parts of Life That Look Different After MS

Posted on September 30, 2019 by MultipleSclerosis.net

Physical weakness, fatigue, impaired ability to remember information. MS certainly can take a toll on what day-to-day life looks like. For many living with MS, you now have a greater appreciation for what life looked like before the diagnosis.

Because it’s very common to miss aspects of life that fell victim to the disease, we wanted to start a conversation about the topic. On the MultipleSclerosis.net Facebook page, we asked you to share what you miss most.

Here’s what you had to say. Continue reading →

Cut the Deck and Deal the Cards

Posted on August 26, 2016 by MSAA

By Lauren Kovacs

This is a big ticket for those with MS.

We never know what our hand will be. Even frequent shuffling can deal you a bad hand.

Our crystal ball has been smashed. For me thankfully, I had 18 years of a mild MS course. I was able to work, get married, have kids and mostly be like everyone else.

I had been a college athlete and I never thought that being physically active would end. As an adult, I took figure skating, did Irish dancing and clogged. I was always up for something to excel at.

The changes associated with declining mobility are extremely hard. New ways of doing things became an essential skill. Sometimes, there is no way to really deal with the physical betrayal. When it comes to medical equipment, picking fun colors seems to make necessary medical equipment less medical.

Changes can come frequently. Cards are often shuffled and dealt quickly. First, I started needing a cane. No big deal. I bought a blue fish cover for it. A year later, the walker came into the game. I made sure to get one in pink with big wheels and a cool frog bag attached. Then, another hand was dealt. I needed a wheelchair. Not cool. I was not happy.

I again figured a purple one would be fun. Going with devices as non-medical as possible was a good way to deal with that change. I made them extensions of me. A little pinch of personality and a little bling can go a long way. I didn’t fold and stayed in the game.

Last year we took a trip and I needed to bring a walker to use in the cabin. We flew, so I bought a gray one that folded into a garment bag. I used duct tape with butterflies to make it fun.

I really hated the idea of using that walker, but people saw the butterfly duct tape. I was able to enjoy our trip a bit little more. It was still hard to get around, but I felt less disabled.

Making change fun is the only way I can deal with mobility changes. A pink walker, a purple wheelchair or butterfly duct tapes were simple changes that were not medical. Make changes as non-medical as possible, when it comes to mobility equipment. I was dealt a bad hand, but injecting fun is a simple way to make a bad hand livable.

Assistive Technology for Individuals with MS

Posted on August 27, 2014 by Samantha Schech

Over the course of years living with a disease such as MS, there may come a time when more assistance is needed to complete daily activities. Perhaps typing on the computer is becoming a challenge due to spasticity, or driving a vehicle has become difficult because of numbness in the leg. While it may not always be conducive to ask another person for help, perhaps a piece of equipment can aid in getting the task done more effectively. Assistive technology, or AT, is any item, piece of equipment, or software that is used to increase or improve the functional abilities of individuals with disabilities at school, work, home, and in the community.

Assistive technology devices can assist those who may have difficulty with speech, typing, writing, cognition, walking, etc. In each state, a State Assistive Technology Project is available to provide information on assistive technology and consultation about the type of technology piece that may be helpful. A borrowing program may also be available where the devices can be borrowed for up to a certain period of time to see if the device will be effective. Information about available loans to help with more expensive devices can be discussed as well.

In trying to determine the type of device that may be helpful for a specific need, working with a rehabilitation professional such as a physical or occupational therapist might help to clarify the type of device that would provide the best assistance. They can make specific recommendations of devices that can assist with a variety of needs and may also help with checking whether insurance will cover the item recommended.

What assistive devices have you used? What avenue did you take to receive the device?

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