I recently went out to town with my family to have dinner and see a movie in theaters. Although it was fun to have some good food and see a movie on the big screen with movie theater popcorn (and butter), I couldn’t help but think how easy it is to recreate a similar experience at home, and at a fraction of the cost and probably a bit healthier. Here are some tips to have dinner and a movie at your own home!
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Remaining Active in the Summer Heat
Exercise and staying active has so many benefits such as improved mental health and wellbeing. However, for many, the extreme summer weather we have been experiencing can make it hard to stay active. Heat sensitivity is a common problem among people with multiple sclerosis, often aggravating common symptoms.
Here are helpful tips on ways to keep your body cool and remain active this summer!
Continue readingRemaining Resourceful Through Community Support
It can be overwhelming managing doctor’s appointments, bills, medications, and all the many responsibilities that come with managing multiple sclerosis. However, prioritizing and strategizing tasks can help manage the stressors of it all to not feel so daunting.
First, prioritize the necessities. I like to think of Maslow’s Hierarchy of Needs when feeling overwhelmed with what needs to be prioritized. Food, necessary medications, rent/mortgage, and basic utilities always come first.
Motherhood and MS
We all know a mother or mother-like figure in our life who demonstrates selflessness, resilience, and strength in all that they do. Mothers with multiple sclerosis especially, take on the unique challenge of navigating symptoms and flare ups, while also balancing being a mom.
Overcoming challenges as a mother with multiple sclerosis can be demanding, but also rewarding. It can become a balancing act between self-care and caring for your family, leaning on support, and being adaptable to accommodate flares and symptoms.
Continue readingStress and Mindfulness
Stress is unfortunately inevitable. We all can experience stress in some form, and it can manifest itself into physical and further emotional distress as well. Multiple sclerosis patients especially can experience stress or anxiety when it comes to managing their diagnosis. Managing stress is important for MS patients to help prevent relapses and to strengthen their immune response.
“Our anxiety does not come from thinking about the future, but from wanting to control it.” – Khalil Gibran
To better manage anxiety and stress, a great place to start is with our thoughts. Often, our thoughts and worries lead down a deeper hole of anxiety. Take a minute to think about the top stressors in your life right now. If your mind goes to the “what-if,” then begin to shift it to the “what can.” The “what-if” is what easily spirals our thoughts. Focusing on what can be done about it in the here and now is a more productive way of thinking. We also forget to think about what is the best thing that can happen!
Continue readingContribution and Coping – Don’t Stop
There will always be hard days, we simply cannot escape this. Have you ever woken up and felt so fatigued, but knew you had so much to accomplish that day? Or maybe your day was going well, and bam…you’re hit unexpectedly. It’s easy to feel defeated, but what would your day look like if you kept going?
Coping is the ability to deal “successfully” with a challenging situation. The successful part is the grey area. What does that mean to you? To me, successfully dealing with something hard is having a moment of clarity to keep going, even if it’s for a short period until we must cope again. It could also be continuing through our day-to-day while having something in the back of our mind that we are reminded of every so often.
Continue readingOnly 12 Spoons
I spoke with Alice, a long-time patient with secondary, progressive MS. When I asked Alice the question, “What do you wish others knew about MS?” she shared “I only have 12 spoons.” I was initially confused, but then Alice explained that these hypothetical spoons symbolize her energy in a day. These could be simple tasks to the average person, such as getting out of bed, washing your face, brushing your teeth…before you know it, three spoons have already been used for the morning. Alice says that using this analogy is a way for her friends and family to better understand her energy level throughout the day, so they can plan wisely!
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