About Samantha Schech

I am a Client Service Specialist here at MSAA. I have my Master's Degree in Social Service from Bryn Mawr College, a school just outside of Philadelphia. Originally from the Baltimore area, I am a huge Baltimore sports fan and am often heard cheering for the Ravens and Orioles. In my spare time, I enjoy cooking, traveling, and playing kickball with my friends in an adult sports league.

Follow the Yellow Brick Road: Planning Ahead When You Have MS

Have you seen the car commercial recently where someone says something along the lines of, “we have to do something about this car”, and the little yellow line pops up and guides them to where they need to be? Wouldn’t that be wonderful, if for every problem in life that we encountered, a little yellow line helped guide us to the right choice?

Although there are no yellow brick roads guiding our way, we do have a chance to prepare ourselves for our future. I have always held true the saying, “hope for the best, plan for the worst.” Although I may be called a cynic for thinking this way, I always feel it is best to have a plan in case things don’t work out the way they were expected.

For individuals faced with a chronic illness such as MS, keeping on track and following the plan are two very important steps. From the very first doctor’s appointment a plan is created; what medications to take, what testing to have completed. It becomes part of a routine. But what happens when that plan falls apart? Maybe you need to switch medications, or you are unable to continue working. You may find yourself asking, “now what’s the plan?”

Having the next step in mind is a way to try and avoid the panic that may set in when life throws you a curve ball. To help keep on track with your MS, it is important to work with your doctor not just about the present MS challenges, but also consider planning for the future. Creating a plan about who to call and what to do if you feel as though you are having a relapse may make the experience feel a little more in your control.

Also, having discussions with family regarding long term plans and making small changes that may assist down the road can lead to less confusion and uncertainty in the future. Perhaps you’ve thought about moving to a more centralized location with more resources, or downsizing to a smaller more accessible home. For some people, these are important considerations for their future plan. What plans have you created or thought of for yourself? Looking back at your life, do you see any areas where you wish you had made a plan?

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Talking with Friends and Family about Multiple Sclerosis & its Symptoms

For this month, we focused our blog around managing MS.  Some helpful tips were provided and the one that sticks out to me was about “asking for help”.  Understanding your limits and what you are able to accomplish in a day is a great way to conserve your energy and focus on what is important.  Often times it is important to involve those around you, but navigating the “how to” is a challenge.

For those who struggle with the symptoms of MS that may not be visible (i.e. fatigue, pain, and cognitive changes), the hidden symptoms of MS, asking for help from a friend or loved one can often be a daunting task.  We frequently hear and read stories from individuals who feel guilty asking for help, because they don’t feel that they “look” sick.  They fear they will be judged in asking for help.

It may be helpful, before you tell everyone about your MS symptoms to think; does this person play a significant role in my life? And, can I rely on them in the future if I need help?  If the answer to both of these questions is yes, then it is time to put on your teacher hat and educate those identified helpers about what types of symptoms you experience and what they may look, or sound like, for you.  MSAA’s The Motivator Winter/Spring 2013 edition discusses may of the hidden symptoms of MS: https://www.mymsaa.org/publications/motivator/winter-spring13/.  This publication can be shared with friends and loved ones to further provide education and information.

Not every person with MS experiences symptoms in the same way, so providing information as to how MS looks and feels to you is very important.  With more understanding and better education, we can hope to reduce the stigma around the hidden symptoms of MS and promote a more positive experience for both yourself and your loved ones.

Please share your experiences, have you had to educate your friends and loved ones about the symptoms of MS?  What has worked for you?

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The Time is Now to Start Something New: A Quick Step Guide for the MS Community

“Your present circumstances don’t determine where you can go; they merely determine where you start.”

–Nido Qubein

As the summer comes to an end and we embark on the last few months of the year, it is time to challenge ourselves and start something new.  Just as the kids prepare for the new school year, prepare yourself for a new task.  Is there a goal you wish to accomplish, a skill you would like to learn, or maybe just a good book you’ve been meaning to read?

Starting something new can be scary, especially if you have tried unsuccessfully in the past.  But from failure we can learn, and today is a new day.

  • First, decide what it is that you want to accomplish.
  • Second, set measureable goals for yourself, or mini-goals to help move you along.
  • Third, make it realistic.  Many little successes over time reinforce your goals and set you up for success.
  • Fourth, set a deadline, but make sure to provide yourself with a reasonable amount of time to accomplish the task.
  • Last and more importantly, reward yourself!  Even if you haven’t succeeded, you set out to try something new and have probably learned some things along the way.

Starting now, what goals would you like to accomplish?

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Thank You For All That You Do

This month we focused on offering support and resources to the caregivers providing love and support to many with MS. We shared tips, stories, and resources for the caregivers who have dedicated their lives to helping others. On behalf of the entire MSAA staff, we say Thank You!

“It is one of the most beautiful compensations of life, that no man can sincerely try to help another without helping himself.”
–Ralph Waldo Emerson

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Resources for the Caregiver

The role of the caregiver is often described as “the rock” or “the foundation” of the family; the one responsible for the wellbeing of all. But who takes care of you? Just as much as your loved one needs your support, you need support also. It is ok to take a break, and turn to help when you need it. In order to be the best caregiver you can be you need to be well rested both mentally and physically. Being the primary caregiver for an individual with MS can be challenging. The unpredictability of MS itself creates an additional challenge in trying to manage your day to day life.

There are some helpful resources for those in the caregiver role to aid in the management of the daily challenges of caregiving. The Family Caregiver Alliance provides caregiving information and advice as well as a guide to state resources available to caregivers. The Caregiver Action Network offers information and resources to individuals in all types of caregiving situations. The site helps to identify the various needs that caregivers may express through their varying roles.

Another great resource directed specifically towards spousal caregivers is the Wellspouse Association. They coordinate a national network of Support Groups and facilitate a Mentor program. And when the time comes for a break, the National Respite Network provides a National Respite Locator to help caregivers locate respite services in their community. The site also helps to educate caregivers on how to find and choose appropriate respite care.

With so many resources available to assist the individual in the caregiving role, now it is your time to take a break and be the best caregiver that you can be.

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Tips for Staying Cool and Conserving Energy

As the temperature continues to rise during these summer months there are several ways to help beat the heat and conserve your home energy. Start by trying some of these tips to lower your energy bill and keep your home cool!

  • Keep doors closed to uncooled parts of your home. If you have central air conditioning, close off the vents to any rooms that you will not be using.
    • Tip: The lowest level of a home is often the coolest. If you have a basement, plan to spend most of the day in this room, to avoid over cooling the rest of your home.
  • Using ceiling and other fans, even if you have air conditioning, helps to provide additional cooling and better circulation of the cooled air.
    • Tip: Place a bowl or tray of ice water in front of a fan to increase the chill factor!
  • Seal any holes or cracks around doors and windows, this helps to eliminate cold air leaks. Make sure to seal around window air conditioners with insulation.
  • Close the blinds and shades in windows facing the sun to keep out the sun’s heat and help fans and air conditioners cool more efficiently.
    • Tip: Check out energy efficient curtains or blackout curtains to help keep the light and heat out of a room!
  • Clothes dryers and dishwashers produce a lot of heat. Use them in the early morning or late evening, not during the hottest part of the day.
    • Tip: Wash clothes in cold water and air dry in front of a fan. This tip works the same as the bowl of ice water!
  • Turn off TVs, computers, and other electronic devices rather than use standby mode. Electronic devices can create additional heat in the home.
  • Unplug items like cell phone chargers, DVD players, microwave ovens and other appliances. They still use energy even when turned off!
    • Tip: Plug electronics into power strips and turn off the power switch when the items are not in use.

The Low Income Home Energy Assistance Program (LIHEAP) helps keep families safe and healthy by assisting families with energy costs. Check in with LIHEAP about energy conservation and low income energy assistance programs. Often in the summer months, those with lower incomes, or individuals with disabilities are offered discounts on their energy bills to help keep their homes cool during the summer months. For information on applying for LIHEAP assistance, please contact your LIHEAP State or Territory agency.

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National Fruits and Veggies Month

veggiesJune is National Fruits and Vegetable month. While we should be eating fruits and vegetables every month out of the year, June is merely welcoming back the garden-fresh produce that we’ve missed all winter long. The biggest part of eating right for summer is listening to what your body tells you about what it wants to eat. As you approach these summer months, do it with fruits and vegetables in your belly and in your fridge. Stock up on vegetables rich in color. Maybe have a bowl of fruit for a snack instead of chips. Encourage your friends and family to join you in your venture towards a healthier lifestyle!

Cantaloupe, watermelon and tomatoes are great fruits to help you stay hydrated. Great summer vegetables include summer squash, sugar snap peas, corn, bell peppers and onions. Eggplant, zucchini and green beans make a great source of dietary fiber.

fruits and veggies

Broccoli is a nutritional powerhouse: It is full of vitamin C, calcium, fiber, and vitamin A.
Carrots are a good source of fiber, which helps to maintain bowel health, and aid in weight maintenance.
Watermelon, which is especially terrific this time of year, offers a juicy, sweet taste and high water content, while packing in antioxidants, vitamin C, and potassium.
Grapes aid in the maintenance of healthy blood pressure. Eating the whole fruit instead of consuming the juice contains the added benefit of fiber.

Tips for your wallet: Fresh produce is more affordable when it is in season. Also, look for weekly specials on fresh, frozen, canned, and dried fruits and veggies. At a restaurant, always ask what vegetables, including salads, are available as substitutes.

What fruits and veggies will you be adding to your diet this June?

watermelon

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Dear Diary….

The grown up version of a teenage diary, journaling is a great way to connect your thoughts and tune in to how you are feeling on a daily basis. Although difficult at first, eventually you will find yourself writing page among page effortlessly. Journaling allows us to express our deepest fears, saddest sorrows, and greatest accomplishments in an open non-judgmental format.

Writing quickly frees your brain from “shoulds” and other blocks to successful journaling. If it helps, pick a theme for the day, week or month (for example, love, confusion, change or anger). The most important rule of all is that there are no rules!

All you need is a pen and paper, nothing too fancy to start! Online journaling resources such as Penzu and Penmia can be used for those who may feel more comfortable typing rather than writing. Also in this format, assistive devices can be utilized in order to journal more freely and openly without the struggle of pen and paper. Even a voice recorder or video recorder could assist with journaling!

By journaling routinely you will get to know what makes you feel happy and confident. You will also become clear about the situations and the people in your life. Journaling about stressful events helps you come to terms with them, thus reducing the impact of these stressors on your physical health. Journaling about anger, sadness and other painful emotions helps to release these feelings. By doing so, you will feel calmer and better able to stay in the present.

Tune into yourself. Journaling can benefit individuals with MS, by connecting the mind and body. Journaling about a symptom creates awareness around the symptom; when did it start, what you were doing when it started, and did anything make it better or worse. Symptom tracking through journaling is an effective way to help manage your MS.

Through your expressions you’ll discover that your journal is an all-accepting, nonjudgmental friend. And may provide the cheapest therapy you will ever get. Best of luck on your journaling journey!

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Get Organized!

Spring is almost over and for those of us who have emptied our closets of all the winter wears; it is now time to get organized! Maintaining an organized lifestyle helps to manage the flow of the day, week, and/or month. If we view our lives as a greater whole, we are able to appropriately plan and make the best of our time. Getting organized also allows us to delegate some tasks to others as needed. If we know what is coming up, we can plan accordingly.

Here are some tips for starting your new organized lifestyle:

Utilize your time off: For many, the weekends offer solitude, a break from the day-to- day grind. The weekends can also offer an opportunity to get organized for the week. Start by planning out the meals for the week and laying out the clothes you wish to wear. By taking this extra step, you can potentially avoid stressful situations during the week and we could all use a little less stress!

Forget the “to-do” lists: Years ago my sister introduced me to the “ta-da” list, and it has forever changed my view of “lists”. To-do lists are negative in nature and can often add more stress than they intend. When you look at that long list of things to-do, it’s often a reminder of the things you didn’t do. Taking a more positive spin is the e “ta-da” list. After you have completed a task, you check it off and yell “TA-DA!” It may seem childish, but sometimes everyone needs a little pat on the back for all the things accomplished throughout the day!

One day at a time: Set specific tasks for each day of the week and try to stick with it. For example, select one section of your home to work on. Let’s say Monday’s are “kitchen” days. Think of all the things you do to maintain your kitchen and list them out: sweep, clean out fridge, de-clutter. Now time to delegate tasks; create a list for your spouse or children with their daily “tasks”. By doing these little things one day at a time, you avoid the all-day Saturday cleaning fest, which leaves you completely wiped and ruins the rest of your weekend.

Organization station: Create a place in your home to keep track of your “ta-da” list and “daily-task” sheet. Select a place that you know you will see often and actually use. I like to keep mine near the front door as a daily reminder to myself and family members when they come and go.

Organization doesn’t just happen overnight and can be a real challenge for many people. So make it your own, do what works for you and your family. I am interested in hearing how others stay organized and manage their lives. What do you do?

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Four Legged Friends

I think that one of the most enriching and enjoyable experiences in life is to own a pet. Pets provide us with a feeling that is really hard to describe; it’s a feeling of companionship, support, and love all bundled up into one being. The feeling of love is one which is an unconditional love that no matter how bad of a day you are having, they are there to support you and love you. Pets provide comfort, a shoulder to cry on, or a “person” to talk to who can just listen.

For me, one of the best benefits of having a pet is- no talking back! No snide comments or judgments about why you are or are not doing something. I am sure there are people that think I am crazy because I talk to my dog like she is human. There’s just something cathartic about it, knowing that I can share anything and not be judged..

“A dog is the only thing on earth that loves you more than he loves himself” –Martin Buber

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When you have another life that looks up to you and relies on you for their well-being, it promotes a sense of self-worth. You want to be your best to provide for your pet. It is said that petting a dog releases beneficial hormones into the bloodstream known to be associated with healing and feelings of well-being. Not only that, but they make you laugh. And laughing is known to protect your body from stress. I laugh every day at dinner when my three year old dog gulp’s down her food like someone is trying to steal it from her, then proceeds to let out a HUGE belch when she is finished! The power of laughter is contagious and lightens your burdens and inspires hopes.

There is a pet out there for everyone. If you are having issues with mobility, or fear not having the energy to “play” with your pet, consider a cat, or a bird; both of which are fairly self-sufficient animals and can get by on their own during the time when you don’t have the energy. Maybe pet ownership isn’t for you at all, sometimes the financial burden and responsibility is too much.

That doesn’t mean you still can’t be affected by the power of a pet. There are several options for individuals to interact with animals through either therapy animal or service animal A therapy animal is trained to provide affection and comfort to people in need. They, along with their handlers, come to your home or facility for visits. Therapy animals differ from service animals in that they are not trained to perform a task for the benefit of an individual. A Service Animal is defined by the Americans with Disabilities Act as any dog individually trained to do work or perform tasks for the benefit of an individual with a disability. This can include guide, mobility, sound alert, and medical alert/response work. Service Animals can provide the same level of support and comfort that a therapy animal can, however, they take their jobs very seriously!

gypsy2

If you are interested in finding out more about therapy animals or service animals, there are several organizations and programs available to assist with your search. Pet Partners is one organization that helps people live healthier and happier lives by incorporating therapy, service and companion animals into their lives. Their website http://www.petpartners.org/ provides information and resources for individuals interested in therapy or service animals.
How have you been affected by a pet? Have you ever considered a service animal?

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