Advice from the Community: Awaiting an MS Diagnosis

Posted on May 29, 2020 by MultipleSclerosis.net

Waiting is the hardest part. For anyone who thinks they may have MS and is undergoing testing, awaiting results can be scary and downright hard to deal with.

To learn more about how to cope during this challenging time, we reached out on the MultipleSclerosis.net Facebook page and asked: “What advice would you give to someone who is going through the testing and diagnostic process but has yet to receive a confirmed diagnosis?”

Almost 90 members of the multiple sclerosis community shared their hope and experience. Here is what they said. Continue reading →

The Biggest MS Triggers

Posted on April 29, 2020 by MultipleSclerosis.net

In the early days after diagnosis, MS triggers are often a mystery. However, many find that the more time they have lived with MS, the more they know exactly what makes their symptoms worse.

To hear about some personal experiences with MS, we reached out on the MultipleSclerosis.net Facebook page. We asked the community to Continue reading →

How Multiple Sclerosis Affects Sleep and Dreams

Posted on March 30, 2020 by MultipleSclerosis.net

Dreams are a wildcard—whether you are living with MS or not. For some, dreams are an escape from the physical limitations of life with multiple sclerosis. Others experience something different when they go to bed. Good or bad, the dreams and nightmares tend to have one thing in common: They are extremely vivid.

To find out more about these experiences, we reached out Continue reading →

Multiple Sclerosis and Headaches

Posted on February 28, 2020 by MultipleSclerosis.net

In his story “Does Multiple Sclerosis Cause Headaches?” posted on MutiplesSclerosis.net, author Matt Allen explores the correlation between MS and migraines. As someone with MS and also a migraine sufferer, he took notice as more and more attention was paid in the media to the possible correlation.

In his story, he cites a 2017 study that found that headaches are experienced by 78 percent of people newly diagnosed with MS.

This study alone is not enough to make a Continue reading →

Young and Disabled with MS

Posted on January 31, 2020 by MultipleSclerosis.net

Multiple sclerosis is one of the most unpredictable diseases there is, especially when it comes to young people. Symptoms vary widely, and the time it takes to progress can be long or very little at all.

A difficult condition to understand

In large part because it shows up so differently for so many in the community, it’s a difficult disease to understand. But, anyone living with it Continue reading →

How Winter Can Affect MS

Posted on December 23, 2019 by MultipleSclerosis.net

For most of you, there is one certainty when it comes to winter and MS: the colder weather and gray days have an effect on you. But how the weather affects you is a toss-up.

We reached out on the MultipleSclerosis.net Facebook page to ask: “Do the darker, gray days of late fall and winter impact your emotional symptoms?”

In the community, 925 members voted. An overwhelming majority Continue reading →

Busy Fighting Progressive MS

Posted on November 27, 2019 by MultipleSclerosis.net

Over on MultipleSclerosis.net, we recently shared an article by Dianne Scott about fighting the secondary progressive stage of MS (SPMS). Her words generated a lot of discussion in our community about how MS looks from the outside compared to how it can feel from the inside! The many thoughtful responses added so much to the article and the conversation about life with MS that we decided to compile some of the comments and share them here. Continue reading →

Vacation Options for People with MS

Posted on October 28, 2019 by MultipleSclerosis.net

Heat will do it. Being unable to get around easily will do it. For so many people living with Multiple Sclerosis, there are many reasons to think twice about going on vacation. It can seem like too much work for not enough payoff.

But everyone deserves a vacation.

To find out how the Multiple Sclerosis community is finding ways to vacation that truly work, we reached out on the MultipleSclerosis.net Facebook page. The question we posed to the group is: “Are there any vacation spots that you would recommend as being ‘MS-friendly?’”

Almost 50 of you commented, sharing Continue reading →

Parts of Life That Look Different After MS

Posted on September 30, 2019 by MultipleSclerosis.net

Physical weakness, fatigue, impaired ability to remember information. MS certainly can take a toll on what day-to-day life looks like. For many living with MS, you now have a greater appreciation for what life looked like before the diagnosis.

Because it’s very common to miss aspects of life that fell victim to the disease, we wanted to start a conversation about the topic. On the MultipleSclerosis.net Facebook page, we asked you to share what you miss most.

Here’s what you had to say. Continue reading →

Running the Household while Living with MS

Posted on August 30, 2019 by MultipleSclerosis.net

Facing fatigue daily or almost daily is a lot for anyone to get through, and it’s frequently cited as the most frustrating symptom for people living with MS. It’s especially challenging when anyone with MS also has to keep a house clean, get food on the table, run errands or do the same work they did before receiving the diagnosis.

And yet, you all keep going. We asked the Facebook community at MultipleSclerosis.net which household chores are Continue reading →

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