Swim for MS Updates – April 2013

MSAA is excited to share several updates on Swim for MS.

National Volunteer Week and Global Youth Service Day

Are you looking for a way to get involved with a great cause or receive volunteer hours? National Volunteer Week is April 21-27 and Global Youth Service Day is April 26-28! The theme this year is Celebrating People in Action.

How You Can Get Involved

During National Volunteer Week or Global Youth Service Day, take the pledge to Swim for MS and spread awareness in your community! Here are some ideas:

  • Pledge to swim 100 laps or jump 250 cannonballs and raise $250.
  • Pledge to distribute 50 Swim for MS brochures in your community*.
  • Pledge to ask 10 local stores to post a Swim for MS flyer on their window or on a wall*.
  • Contact your local community pool and set up a one-day Swim for MS event, such as pool volleyball, a team relay race, or a pool party.

*If you will be distributing flyers or posters, please submit this form. MSAA will contact you within 24 hours.

Pura Vida Bracelets

MSAA has partnered with Pura Vida Bracelets for MS Awareness! For each bracelet purchased, Pura Vida will donate $1 to MSAA. To get your Pura Vida Bracelet, please visit this link.

CaféPress

Swim for MS has a CaféPress site! Here, you can spread awareness by purchasing a Swim for MS hat, backpack, sticker, car magnet, and more! To view our Swim for MS shop, please go to CafePress.com/SwimForMS!

MSAA’s Partnership with Fitter and Faster

The Multiple Sclerosis Association of America (MSAA) is pleased to announce its new partnership with Fitter and Faster Swim Tour to help promote Swim for MS. Fitter and Faster Swim Tour (FFT) organizes and plans professionally managed swim clinics across the United States to teach and inspire swimmers of all ages and skill levels.

Serving as a distribution sponsor for Swim for MS, FFT will promote it partnership with MSAA to all those who attend their 2013 national clinic tour through flyers and onsite announcements, include the Swim for MS name on each participant’s identification wristband and post ongoing updates on Swim for MS activities to Facebook and Twitter.

And the April Winners are…

Missy Franklin Autographed Photo:
Congratulations to Jacob for raising $1,485 through Swim for MS in the month of March!

Disney One-Day Park Hopper Passes:
Congratulations Matt and Hannah for winning two Disney one-day park hopper passes!

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MSAA’s Artist of the Month for April 2013

We have received many wonderful submissions from across the country and are delighted to share their work and their stories with you. Please visit our online gallery to view all of the submissions.

April 2013 Artist of the Month:  Susan C. Russo – Pearland, TX

 

artist april 2013

 

 


 

 

 

“I have been interested in art since I was a child. I love the creative process. I just close my eyes and let my thoughts come to life. I feel that my work is an expression of God’s love and His gift to me. It would be a great injustice not to share the talent He has given me.

Additionally, art is a beautiful expression of not letting my MS gets the best of me. On days when I don’t feel all that well, I just pick up a brush or pastel and express my feelings in my paintings and drawings…”
Read more from Susan…

Be inspired – please send an online card featuring artwork by MS artist Susan C. Russo and spread awareness of MS and MSAA.

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Anna’s Adventures at SXSW, Part 1

Hi Y’All from Austin, Texas!

Hello to my friends at MSAA from South-By-Southwest (SXSW)! SXSW, is a 10-day music, interactive and film conference jam-packed with movie premieres, awards, panels, tech conferences, “tweetups”, concerts, parties and more! This is my SIXTH year at SXSW and there’s sure a lot in-store for me and my photography team as we embark on yet another musical journey during a very volatile, chaotic, and increasingly popular festival!

This year my agenda includes participating in a party hosted at Willie Nelson’s ranch (Luck, Texas) called the Heartbreaker Banquet. This is the second year I am participating in the Heartbreaker Banquet, I was part of the first-ever Heartbreaker Banquet last year at SXSW. The idea for this party came from a friend of mine, who worked tirelessly to secure the sponsors and Willie Nelson’s ranch!  For those of you who do not know Luck, Texas is the original set for the Red Headed Stranger movie and currently serves as Willie Nelson’s world headquarters. Last year, I did portraits in the jailhouse on the ranch; this year I’ve rented a 1963 retro Airstream trailer where I will be taking band portraits of the performers at the Heartbreaker Banquet. I am happy to announce this year’s Heartbreaker Banquet  has doubled in size, going from eight bands playing on two stages to 16 bands and THREE stages!

I will also be putting up a music photography gallery of my work and the work of another wonderful photographer friend of mine, Courtney Chavanell. The public will be able to view and purchase all of our portraits in Willie’s General Store on the ranch.

I am looking forward to sharing photos and stories from the Heartbreaker Banquet, so stay tuned! (Or follow the story on Twitter or Instagram!)

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Multiple Sclerosis Association of America Teams Up With SwimOutlet.com To Promote Swim For MS

The Multiple Sclerosis Association of America (MSAA) is pleased to announce its new partnership with SwimOutlet.com, the web’s most popular swim shop, to help promote the charity’s national fundraiser, Swim for MS. Serving as the distribution sponsor for Swim for MS, SwimOutlet.com will feature promotional information and ongoing updates on swim events through newsletter articles, targeted email campaigns, and posts on social media including Facebook and Twitter.

Supported by national sponsor Genzyme Corporation, Swim for MS is a unique fundraiser in which volunteers are encouraged to create their own swim challenge while recruiting online donations from supporters. Swim challenges can range from swimming laps for pledges to jumping cannonballs for cash. Swim for MS appeals to swim enthusiasts of all ages, social and community groups, students seeking volunteer service hours, and families enjoying their backyard pool. For more information and to register, visit SwimforMS.org.

“We’re incredibly pleased to support the MSAA by spreading the word of their Swim for MS initiative,” said Rob Penner, VP, Sports Marketing at SwimOutlet.com. “Together with the help of the aquatic community, they can continue to improve the lives of the MS community through their wide-range of services and programs.”

Adding additional awareness and excitement to the fundraiser, MSAA has enlisted the volunteer support of four-time Olympic gold medalist Missy Franklin to serve as the Swim for MS Ambassador. Franklin is featured in a series of flyers, brochures and a new national television public service announcement, encouraging individuals to participate in this exciting fundraiser which supports vital programs and services for the multiple sclerosis community. Starting in March, MSAA will award the top fundraiser of the month with an autographed photo of Missy, providing the minimum amount raised is $500.

“Swim for MS provides an individual or group the opportunity to combine one’s love of swimming with giving back to the community,” states Franklin. “Start your Swim for MS campaign today and make a difference!”

About SwimOutlet.com
SwimOutlet.com is the largest online specialty store for aquatics in the United States. The online retail store grew out of a dedication to providing the best goods and services to anyone interested in aquatic activities and sports. SwimOutlet.com has the largest selection for swimming, water polo, fashion, beach and surf! In addition to having an extensive selection and the lowest prices, SwimOutlet.com offers phenomenal customer service and fast shipping. The company has won the hearts of over two million happy customers who’ve helped spread the word on where to find the best deals.  It has quickly developed into the web’s most popular swim shop! For more information, visit http://www.swimoutlet.com.

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Ramapo College Swim Team Dives Into Action for the MS Community

Please take a moment to view this video the Ramapo College of New Jersey Swim Team made for their Swim for MS event! If you are in the Mahwah, NJ area on Saturday, February 2 stop by the college to cheer on the team in their final home swim meet of the season at 2 pm!

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Staying Active with MS

My exercising pursuits probably started at age one and a half when my foiled gymnastics routine failed to propel me out of the crib. Already I showed signs of being active and rambunctious and my “antics” did not stop despite stitches from my failed attempt. At age six my mother watched in horror as someone pointed to a young girl, her daughter, about to jump from the high diving board. Finally, at age eight she enrolled me in PAL (Police Athletic League), in an effort to allow me to channel my excess energy constructively.

I continued an active life style throughout my life, until I was diagnosed with MS.

In August of 2009 I was training for my first half marathon when I was diagnosed with RRMS. The diagnosis came as a shock to me because I was not only fit but maintained a healthy lifestyle.  The news, was a shock to me and I wasn’t sure how to cope.

After the diagnosis I shut everyone and everything from my life, including running and working out. I could not envision going for a run and collapsing from an MS episode. I truly had no idea what to expect but I had anticipated the worst of what could happen.  I couldn’t go to the gym and have my ego remind me of what I could no longer do.

As I struggled with the disease I became increasingly depressed. In the past, running would always assuage any crisis I had to face; I no longer had that outlet to release my depression and frustrations.  It was a catch 22 – if I went out for a run I could collapse (in my mind) and if I didn’t I would sink further into an abyss that I had created.

It took months for me to realize that I had hit a wall built not out of mortar but fear and indecision. MS had already proven to me that I would not have the same life that I had enjoyed in the past. So, why could I think that I could easily go back to my “old” form of exercising?   Reluctantly I had to give up starting off at the high diving board and had to wade into the kiddy pool instead.

And so as my frame of mind changed so did my temperament and condition. I started jogging slowly, almost at a walk, and much less distance than I was accustomed to. I had no delusions of grandeur, only of building up my courage and stamina at whatever pace I could manage at the time.

I also changed to a gym that had a pool.  Swimming was an activity that I had not done since I was a kid.  I wasn’t strong but I just wanted to get into the pool and swim a few laps at a time. The warmth of the water me gave me the impetus to stay in longer and achieve a little more each time. There was a familiar and safe emotional sensation that would flood my senses as the memories that I had as a kid, swimming in Puerto Rico and the JCC (Jewish Community Center), would come to the surface.

My legs finally started getting stronger and my attitude shifted to one of jubilance. I became more positive about the future and my life with MS. I realized how much I missed exercising. It had always been such an important part of my life. But more so, the endorphins that were released while I worked out had a positive impact on how I felt.

I also realized that it didn’t take much for me to fulfill the joy that exercising once brought me. It was as simple as exercising with light weights, going for a walk, or aerobic swimming.

I didn’t have to try to set out to break any type of record. I needed to listen to my body when it was telling me that it was as important to exercise my body muscles as it was the brain muscles. If I didn’t use them they would atrophy, as they were already doing. And, when my body was tired I needed to heed and do less.

My “baby step” routine continued until I was finally able to run my first half marathon last year and four months later completed an 817 mile hike through the Arizona Trail.

We all have different compositional make ups. Our MS symptoms are different and so we need to tailor our activities according to our capabilities. Any form of exercise, at our own pace, is instrumental to our physical and emotional and well being.

Please note: If you are looking to start any new exercise routine you should first consult with your physician.

 

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Swim for MS Update

Don’t miss your chance to be a part of the action!

Dive into Swim for MS today!

MSAA is pleased to announce a new prize for participants in the Swim for MS program: beginning in March, the top fundraiser for the previous month will receive an autographed photo of Missy Franklin! (Our first monthly prize will be awarded in March to the participant who has the highest Swim for MS fundraising total for the month of February.)

Missy Franklin MSAA Swim for MS Ambassador

Missy Franklin MSAA Swim for MS Ambassador

Sign up today to begin your Swim for MS and your chance to win an autographed photo of Four-time Olympic gold medalist and MSAA Swim for MS Ambassador Missy Franklin!

About Swim for MS

Swim for MS is a national fundraiser in which volunteers are encouraged to create their own swim challenge while recruiting online donations to support MSAA and the MS community. You can participate individually or recruit other swim enthusiasts to form a team.

Participation as easy as 1-2-3!

  1. Create your swim activity
  2. Set your challenge goal
  3. Recruit online donations

To register, please go to SwimForMS.org. After you complete your registration, select “Access your Participant Center Now” to create your online fundraising page! To inspire you, please check out our Swim for MS Profiles for examples of how to create your Swim for MS challenge

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Hiking for MS – Final Thoughts

I tried to convince myself that I would not cry during my last few steps to the Mexican border, and thus completing my goal of 817 miles on the Arizona Trail. But even after all my meandering through desert, forests, and mountains, lack of uninterrupted sleep and my minimally acceptable hygiene conditions during those last two and a half months I was not hardened to the overwhelming floodgate of tears that swept over me.

I have admitted that I undertook this endeavor in a naïve fashion. I had a purpose in mind and didn’t truly consider the many obstacles that one might face: dropping out of hikers, injuries, maladies, and even getting lost to name only a few.  My purpose was to inspire others and create a national awareness to a disease that I, like hundreds of others, had been diagnosed with. It was my intent to bring national awareness that could impact many lives around the world and, so even my reach was just as ambitious as an 817 mile hike.

Recently I have been asked about the highlight of my hike. I can truly say that there wasn’t any one point that was any more special than any other. The highlights were not necessarily due to my experiences on the trail. Many were due to my interactions with those who opened up their hearts, homes, and selves to us.

Those days when I was privy to walk for an individual with MS were also special times. They were reminders of how we sometimes stumble due to physical impairments and have to find the strength to pick ourselves up each time.

I learned lessons of strength, commitment, and patience as I approached the challenges of each day.

I am thankful to family and friends who supported this hike, and to the MSAA for helping us with our fundraising efforts.

Most of all, I am grateful to all of those who believed that this hike could encourage and inspire those of us who suffer from multiple sclerosis. I thank you for giving me the chance to make a difference.

Seasons Greetings. May this Holiday Season bring blessings and health to all!

 

Editor’s Note: To see pictures and read all of Shawn’s entries from the trail, please visit her website http://hiking4ms.org/

 

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MS as a Blessing

What began happening to my life and the way I saw it as a result didn’t surprise me as much as it did inspire me. MS, after all, has helped shape my life and career.

I began looking at everything I did a little bit more carefully. Apart from staying on-track with medication, I began waking up earlier, working out more, going to yoga and swimming, learning new things all the time, reading the news and more books and eating healthier. I went to more museums, parties, social gatherings. I started writing for fun and sometimes getting published. I started taking chances, asking for help, and hearing yes. I was fueled by hope, and by gain, ad hominem, and really didn’t fear losing anything. And that’s how I am right now.

In a way this diagnosis provided the discipline I needed and I know wasn’t getting before. That’s not to say certain things are and won’t be compromised; but as the most important things have come into focus, my happiness has improved suddenly and immeasurably.

The Multiple Sclerosis Association of America (MSAA) asked me to be their first national ambassador in the fall of 2011. Standing in the middle of Times Square, I almost dropped the telephone through the subway grating — a million emotions rushed through my mind. I was feeling honored, fortunate, and inspired. But as with all major decisions, there were a few immediate doubts.

I deliberated it with my publicists and I had a meeting with several members of the staff at MSAA, I thought about it even more, and when I said “yes” to them and to MSAA, my story went public. Press releases, articles, Wikipedia page, etc etc.  Would this mean I miss out on opportunities because people are scared of an unfamiliar disease? Weeding out riffraff clients? I never cared an inch whether people judged me for any reason before, so, why start now.

This position gave my photography – doing what I love most – a whole new personal significance. It spun me around full circle; I was honored that such a big-hearted heavyweight in the fight against MS saw something in me to represent their ideals and speak on behalf of their mission, helping them  reach their goals.

Now I have the clarity of my limitations, sharpening and shaping my happiness. Colors have gotten bright again in the space I move around in, and I have comfort in knowing that when I can drop this one little story in with the oceans already full of them, it’s one more person saying something, and one more friend that knows a little bit what it’s like.

As ambiguous a condition as MS is, we can treat it, help it, acknowledge it, move around in our lives, and be who we are.

One of the best lessons I’ve learned is that I can’t control my circumstance, people, or exterior situations. What I can do is control my reactions to them, and live on. MS of course is far from ideal, but it is true that who I am, now, I’m better for it.

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New Swim for MS Website Launches!

It’s Finally Here!

MSAA has launced our brand-new Swim for MS website! Check it out by visiting SwimForMS.org!

If you haven’t heard, Swim for MS is a national fundraiser in which volunteers are encouraged to create their own swim challenge while recruiting online donations to support MSAA and the MS community. You can participate individually or recruit other swim enthusiasts to form a team.

It’s as easy as 1-2-3!

  1. Create your swim activity
  2. Set your challenge goal
  3. Recruit online donations

With our new and improved Swim for MS, you will now receive a Swim for MS Welcome Kit (coming soon) in the mail after completing your registration, which includes:

  • One Swim for MS t-shirt
  • One Swim for MS towel
  • 20 Swim for MS wristbands

To register, please go to SwimForMS.org. After you complete your registration, select Access your Participant Center Now to create your online fundraising page! To inspire you, please check out our Swim for MS Profiles for examples of how to create your Swim for MS challenge.

 

Thank you for your support, and happy swimming!

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