Last year, while wandering St. Augustine’s Nights of Lights, I witnessed something truly…um…festively unforgettable? Yes. Let’s go with that. There, weaving through the crowds of holiday revelers in a slightly unhinged, and somehow intact golf cart, was Scrooge, shouting insults at anyone within earshot and driving as if he’d just discovered the gas pedal. Naturally, I knew immediately: this was a Christmas experience I’d have to have a front row seat for next year.
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I’ve already written this blog post once and I’ve decided to scrap it. This is a page one rewrite. My initial post was preemptive. I was writing about something I had yet to experience and now I’m on the other side. Isn’t it funny how much we can project onto something that is yet to be? Better to live in the present, but what a challenge that is for me.
Our topic this month is self-care, and my ultimate self-care starts with a 20-year desire and ends in a goldfinch. On Friday the 13th I got a tattoo of a goldfinch on my forearm. It’s not my first tattoo and probably won’t be my last, but this little guy is the most meaningful to date. The goldfinch is a symbol of finding happiness in challenging times. It is seen as protective, devoted, persistent, and carries good fortune on its wings. What more could you ask for in a little cheerleader when you’re living with MS? It may seem strange that I consider this new addition to my skin as self-care, but I can’t honestly think of a more direct way to honor and treat myself.
Continue readingAs I’ve mentioned in previous posts, I’m a single mom of two young boys (5 & 6) and we live in St. Augustine, FL. It’s hot here. Really hot. Typically, May through October are well into the 90s, and bouncing from one airconditioned space to another is essential even for my non-MSers brethren. To be fair, I like to escape north to the Blue Ridge Mountains when I can, but that only happens once or twice a summer, so I’ve had to get creative on how to spend all of that indoor time. I’m not great at generalizing how I think you should fill your time, so I’ve decided to list out a few things I’ve found to be highly enjoyable as an artsy nerd mom.
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This month we are focused on staying positive while living with MS. I’ve written in the past about the positive outlook MS has provided me and I thought it might be interesting to pick the brain of someone (thing?) else on this topic to see if it generates anything new for me. So, I asked our new friend ChatGPT its thoughts on the matter. Here’s what it dished out:
Kate:
Why is it important to stay positive when living with multiple sclerosis?
ChatGPT:
Staying positive when living with multiple sclerosis (MS) is important for several reasons:
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My journey to motherhood was pushed into warp speed when I was diagnosed 8 years ago. In 2014, I had just gotten married and started having vision and grip issues which led to my eventual diagnosis of MS. Before any treatment was considered, my initial doctor (a lovely human) asked what it was I wanted for my life. I told him I wanted to be a mom. His response: “GREAT! You have 8 months to get pregnant, and if you don’t, I suggest we start treatment and reassess how and when to stop treatment in order to try again in the future.” This was good news, but like, no pressure, right?
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Sure, I can tell you about how frustrating it is to be too fatigued to play with my kids outside or what it’s like to worry that the drink in my right hand might end up on the floor (or on me). I can tell you about my fears about being able to be the mother my kids deserve and what it feels like to forget key information when I’m speaking to someone at work. It’s a lot and it’s constant, but that’s not what I want to focus on. I’ve been diagnosed with MS for six years and since then I’ve had two children, moved out of state and back, gone through a divorce, and started a new job. My world has changed and so have I. There are so many things I’ve read about the dark sides of MS and I certainly don’t want to downplay those aspects in the least, but I do want to also draw attention to something I hadn’t expected upon diagnosis – I woke up.
