About MSAA

The Multiple Sclerosis Association of America (MSAA) is a national nonprofit organization and leading resource for the entire MS community, improving lives today through vital services and support. MSAA provides free programs and services, such as: a Helpline with trained specialists; award-winning publications, including, The Motivator; MSAA’s nationally recognized website, featuring educational videos, webinars, and research updates; a mobile phone app, My MS Manager™; safety and mobility equipment products; cooling accessories for heat-sensitive individuals; MRI funding; My MSAA Community, a peer-to-peer online support forum; MS Conversations blog; a clinical trial search tool; podcasts; and more. For additional information, please visit www.mymsaa.org or call (800) 532-7667.

Making Travel Possible and a Priority When MS Symptoms Make it Hard

By Stacie Prada

In 2014, I visited France for the first time.  I went to Sainte-Chapelle at the recommendation of a neighbor who raved I needed to go when I visited Paris.  It was incredible. The gothic architecture of the building relies on a web of supporting arcs that creates a pattern like no other I’d seen before in real life.  It was awe-inspiring. I’d been told the main floor was beautiful and the upper floor exponentially more incredible.

At the time I recall there was construction and signage indicating only one way to access the upper floor.  As I climbed the tightly curved, narrow and steep stairway, I experienced a visceral moment that had me choking back a sudden sob. My thoughts flashed to friends with mobility issues that would not be able to navigate this route. I realized that this is something that someday I will not be able to experience. In that moment I felt profound grief for what I haven’t yet lost – the ability and freedom to go anywhere without my body limiting me.  Continue reading

Share Button

Accessible Travel Guides

Looking to plan a vacation this summer, but you aren’t certain what your options are?  Below are three travel guides available in MSAA’s Lending Library that offer insight into travel ideas and destinations that can accommodate someone with limited mobility:

Continue reading

Share Button

Read All About It: MSAA’s Newest Publications

Recently, the Multiple Sclerosis Association of America proudly published two new publications: the Winter/Spring 2018 Edition of The Motivator, and the 2018 MS Research Update.

This newest edition of The Motivator features the cover story, “Finding Direction When Newly Diagnosed,” which covers a range of topics including MS basics, treatment options, employment issues, government programs, and more.

The 2018 MS Research Update provides a comprehensive overview of study results on many of the approved and experimental disease-modifying therapies for MS, as well as highlights on new directions in MS research.

Read excerpts from these two publications here:

Continue reading

Share Button

What do you do when you don’t know what to do?

By Penelope Conway

My life turned into a whirlwind of chaos after I was diagnosed with multiple sclerosis. I was faced with more choices than I knew what to do with. Which medications do I choose? What therapies are needed? What supplements help? What diets work? Is there really a cure? So many questions and so few answers. Continue reading

Share Button

Sneaky Alternatives

By Lauren Kovacs

Alternative approaches to MS are pretty personal. Many of us will try just about anything to add to our medication routine. Short of crazy stuff like putting fried eggs on my eyes or sleeping with spiders, I am guilty of trying lots of alternatives.

Some things might help some. I heard massage is great, but it turns me into a sleepy blob. Too relaxed? As if I don’t already fight the fatigue monster 24/7, massages rubs me into a sloth. Not for me. Continue reading

Share Button

What’s the Alternative?

By Doug Ankerman

As a twenty-two year member of the MS Club, I have tried more than my share of alternative approaches to treat multiple sclerosis.  From diets to massage to supplements like turmeric and aloe vera gel.  I’ve questioned my dentist about Mercury fillings.  Researched into CCSVI.  With secondary-progressive MS, I found myself grasping at anything and everything to slow the gradual downward slide.

Here are a few others I’ve dabbled with… Continue reading

Share Button

Beyond Doctor’s Orders: Considering Complementary and Alternative Treatments for Healing

By Stacie Prada

Living with an illness with no proven cure leads me to treat myself as a guinea pig.  I read about the latest studies and breakthroughs for MS and auto-immune diseases. I seek recommendations from people that are managing their health well.  I compare what I’m doing to the treatment and see if it makes sense for me. If the risk is low and I’m not doing it already, I’ll give it a shot.  It’s a very unscientific approach. But given I’m bumping up against an unknown date when my MS could progress, I’m not willing to wait until all the studies are in when it could be too late for me. Continue reading

Share Button

The Underground World of MS: Part 2

By Alene Brennan

How to Navigate the Underground World of MS

Being the invisible disease that it is, multiple sclerosis can make you feel like you’re living in an underground world. So let me lay out a roadmap to help you navigate to better understanding and better health. Continue reading

Share Button

The Underground World of MS: Part 1

By Alene Brennan

My first reaction when I received the diagnosis of Relapsing Remitting Multiple Sclerosis? Do NOT tell a soul. People would judge me and put limits on me. Not to mention I was 37 years old and single. MS isn’t exactly the trait I wanted featured on my online dating profile.

I kept my diagnosis a secret for more than a year. Continue reading

Share Button

Meet the Board

MSAA strives to be a leading resource for the entire MS community by improving lives today through vital services and support – and we could not accomplish this without the help of our volunteer board members. MSAA’s Board of Directors is comprised of accomplished professionals from across the country who volunteer their time to further MSAA’s mission. With our ongoing series, Meet the Board, we hope to introduce you to our wonderful volunteer board members!

MSAA is proud to highlight two volunteer board members this month – Wendy Scott and Ira Levee, Esq.

Wendy Scott
Member of the Programs and Services Committee

Professional Background: Wendy Scott is a professor of law at the Mississippi College School of Law, where she made history as the first African-American to serve as the Dean for the MC School of Law, which she did with distinction from 2014 to 2016. Professor Scott teaches Constitutional Law, Civil Procedure, Evidence, Native American Law, and Gender and the Law. Her scholarship focuses on constitutional theory and school desegregation and she is currently completing a book of dissenting opinions of Justice Thurgood Marshall with her coauthor.

Ira Levee, Esq.
Board Secretary and Member of the Development Committee

Professional Background: Ira Levee, Esq. is a Senior Legal Editor at Thomson Reuters/Practical Law and is an accomplished attorney with extensive experience in bankruptcy law as well as commercial and bankruptcy litigation. Mr. Levee is a member of the American Bankruptcy Institute and has provided legal services for the Volunteer Lawyers for Justice Bankruptcy Pro Bono Program (Newark, NJ) and the Honorable Morris Stern Bankruptcy Pro Bono Project (Rutgers University School of Law – Newark, NJ).


What inspired you to join MSAA’s Board of Directors?

Scott: “I was honored with a nomination to the MSAA Board by James Anderson. I had shared with Jim the story of Stephanie, my sister with multiple sclerosis, and the challenges she faced being diagnosed and affording the medicine needed for successful treatment. My family began donating to research, under the leadership of my sister Sandra, and we are now delighted to support the work of MSAA, which provides direct and needed services to people living with multiple sclerosis.”

Levee: “I have had a longtime association with MS, having served on the Board of Trustees of another MS non-profit organization. After leaving that group, I still wanted to volunteer to help those with MS. After speaking and meeting with several board members of MSAA, I knew this was a group of people that wants to improve the lives of those afflicted with MS. I was invited to join the Board in January 2017. I am proud to be a member of the Board and continue to be amazed by the dedication of the other Board members and more so, by the staff who never seem to stop. Their hard work inspires me to work harder for MSAA.”

What are your goals as an MSAA Board Member?

Scott: “I intend to learn more about multiple sclerosis and use this knowledge to propose ideas for more services. I especially appreciate the focus of MSAA on the particular challenges of women and minorities with multiple sclerosis. I hope to help educate even more communities about our work and find more people in need of the services we provide.”

Levee: “My goals are to get people more aware of all that MSAA has to offer those with MS and their families. This includes not only those with MS but individuals, corporations and medical providers, who can help support, financially and through other means, MSAA’s efforts. The services and products offered by MSAA are so valuable and important, but get little publicity. We need to get the word out through various events. As a Board member, I would like to see a program where Board members can meet people with MS to talk about MS and MSAA.”


Editor’s Note: MSAA is extremely proud and honored to enlist the support of Wendy Scott, Ira Levee, and all of our dedicated Board Members who volunteer their time, expertise, compassion, and leadership to help us achieve our mission of improving lives today for the entire MS community. We are very grateful for their service and look forward to their continued support as we strive to serve more people in more places than ever before. Thank you once again Wendy and Ira!

Share Button