Navigating Life with MS without My Mother

Posted on May 29, 2024 by MSAA

By: Stacie Prada

This is my truth. If my mom hadn’t died when she did, she would have been a comfort and helper when I was diagnosed with multiple sclerosis and felt so alone. She would have made a difference in millions of ways, but I’ll focus here on how being motherless relates to my MS.

I was diagnosed 15 years after my mom died. In hindsight, I’m certain that following her death I had an MS exacerbation characterized by extreme fatigue, depression, and surprising clumsiness. At the age of 23, I was executrix for her estate. It was a monumental responsibility organizing her funeral, managing her finances and legal affairs, selling her home, and dealing with everything a life suddenly cut short entails.

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Including Stillness as a Fitness Goal

Posted on April 17, 2024 by MSAA

By: Stacie Prada

April is National Stress Awareness Month, and it’s a perfect reminder for me to check in with my stress level. It’s an extra busy month for me each year meeting professional and personal commitments while accommodating my health needs.

I recently did a 15-minute High-Intensity Interval Training (HIIT) workout, and I followed it with a guided meditation of the same duration. When I found myself needing more willpower to stay engaged during the meditation portion than I needed during the high-exertion portion, it occurred to me I really needed to work on calming my mind more.

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Stress & MS

Posted on April 5, 2024 by MSAA

By: Brittany Quiroz, “A Hot MS”

I have sort of programmed myself to have a respect for the natural order of things in life. I’m one of the believers that everything happens for a reason. We are given life, and we do our best to milk every second out of it. Obstacles are inevitable. It’s a natural part of the cycle of our time here on earth. I can’t help but think that my difficult walk-through life with obstacles far from the norm contributed to my diagnosis with multiple sclerosis.

There’s so much scientific backing to show how when our body goes into a fight or flight response, that it has a substantial effect on our nervous system. When we continue to put our bodies into that sort of space, eventually it can take a medical toll on our bodies.

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What My MS Diagnosis Taught Me

Posted on March 22, 2024 by MSAA

By: Stacie Prada

My multiple sclerosis diagnosis was sudden and unexpected. Unlike others who undergo years of testing, monitoring, and uncertainty, my diagnosis occurred within two months after a major MS exacerbation. While it was a turbulent and scary experience, at least it was relatively quick.

Because my diagnosis was swift and not anticipated, I learned serious illness can be invisible. Being healthy and having a chronic illness can both be true in the same body. Things are not what they appear. Ultimately, I learned my normal wasn’t normal.

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MS & Acceptance

Posted on March 15, 2024 by MSAA

By: Brittany Quiroz, “A Hot MS”

How do we really come to terms with accepting our new reality with an incurable progressive disability? Right off the bat we probably feel like we have been predisposed to failure. Self-acceptance requires us to really be comfortable with our present situation and let’s face it, there are plenty of parts about living with Multiple Sclerosis that are not considered “comfortable”. MS can present an abundance of changes and unexpected whiplash that we do our best to navigate through.

The key to sustainable self-acceptance relies on our ability to stay present while not setting unrealistic expectations for ourselves. We can be really good at beating ourselves up, can’t we? It doesn’t help that we live in an era where competition is all around us. Our status in society can easily be determined based on how many likes we get. How many followers we have. What car we drive. What our zip code is. What job we have. It’s easy to feel we’re in constant competition with the world.

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Infused

Posted on March 13, 2024 by MSAA

By Chernise Joseph

I wanted to do some corny joke like, ‘Yep, that’s me! I bet you’re wondering how I got here,” for the photo from my infusion on Friday, but it seemed a little too double-edged… badumtiss. No? That’s alright, infusion jokes are never funny unless they’re mixed up juuuust right. Ha, okay, in all seriousness – my multiple sclerosis said hello to me on Friday. Well, I suppose it always says hello, but it likes to do it in unique ways sometimes like in the form of an 8-hour infusion. Whew! You read that right. Eight hours of beeping, vitals, tubing, fluorescent lights, too-cold rooms…

I used to hate infusion days. They were long, yes, but they were mostly scary to me. I didn’t know what to expect, nor did I really understand just how important what I was doing was. Of course, I had done as much research as a 23-year-old with a humanities degree could do, but my brain still felt frazzled. What if I spontaneously combust? What if I grow an extra head? What if I’m patient zero for the zombie apocalypse? It was all I could think of going up to the infusion, during it, and even after for a while.

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Judgment Can Help or Hinder

Posted on February 22, 2024 by MSAA

By Stacie Prada

What do I wish others knew about living with Multiple Sclerosis? I wish they knew their judgment could help or hinder us.

Everyone judges, and it’s not a bad thing. We all have opinions, hopes, fears, disappointments, appreciation, admiration, frustration, and expectations. They come through in our interactions even when trying to hide them. It’s not about the judgment, it’s about how it’s expressed. Whether that judgment comes through as cheerleading or criticizing matters.

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Only 12 Spoons

Posted on February 14, 2024 by Alexa Moreno

I spoke with Alice, a long-time patient with secondary, progressive MS. When I asked Alice the question, “What do you wish others knew about MS?” she shared “I only have 12 spoons.” I was initially confused, but then Alice explained that these hypothetical spoons symbolize her energy in a day. These could be simple tasks to the average person, such as getting out of bed, washing your face, brushing your teeth…before you know it, three spoons have already been used for the morning. Alice says that using this analogy is a way for her friends and family to better understand her energy level throughout the day, so they can plan wisely!

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Celebrating Success and Seasonal Joy: Reflecting on Achievements Despite the Challenges

Posted on December 18, 2023 by Claudia Chavez

Reflecting on our achievements does not come naturally for most of us. The hustle and bustle of the holiday season, work, family, and other responsibilities typically take over. Have you ever felt like you were living on autopilot? I have. Sometimes, I get so caught up in my routine that I lose track of all I have accomplished during the year. It feels like I blinked, and suddenly, it is December, and another year has passed by. This holiday season, I want to reflect on the achievements and joyous moments I had in 2023.

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Celebrando el éxito y la alegría de la temporada: reflexionando sobre los logros a pesar de los desafíos

Posted on December 18, 2023 by Claudia Chavez

Para la mayoría de nosotros reflexionar sobre nuestros logros es algo que no hacemos con tanta frecuencia. El ajetreo de la temporada navideña, el trabajo, la familia y otras responsabilidades suelen tomar el control. ¿Alguna vez te has sentido como si estuvieras viviendo de forma automática? Yo sí. A veces, me dejo llevar tanto por mi rutina, que pierdo la noción de todo lo que he logrado durante el año. Se siente como si parpadeara y, de repente, es diciembre y ha pasado otro año. En estas fiestas, quiero reflexionar sobre los logros y los momentos alegres que tuve en el 2023.

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