Tag Archives: living with MS

Prioritizing Self-Care

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September is National Self-Care Awareness Month, a time dedicated to recognizing the importance of taking care of yourself. In a world that’s constantly on the go, it’s easy to overlook our own needs in the rush to meet deadlines, care for others, and manage daily responsibilities. However, self-care is not selfish – it’s essential for maintaining mental, emotional, and physical well-being.

Self-care looks different for everyone. For me, my favorite form of self-care is going for a walk while listening to a podcast or audio book. Whether I’m winding down after a long day or just taking a break, the combination of fresh air and engaging content always help me recharge! It’s a simple way to create space for myself and reset my mind.

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Team MSAA and runDisney Participant Highlight: Ashlei Brown

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Four years ago, Ashlei Brown ran her first endurance event as part of Team MSAA. The view was about as good as it could get – EPCOT.

In July, Ashlei shared her struggles with a severe MS flare that she experienced in 2020.

“2020 I was in the biggest episode of my life, hardly able to walk. I was stressed about moving my family across state lines from Florida to Tennessee into unfamiliar territory with no extended family to lean on… in the middle of COVID. My MS is completely under control now, thanks to the amazing people at @VUMChealth.

I think it’s time to run again for @MSassociation”

We wanted to hear more about Ashlei’s journey with Team MSAA, and what inspired her to run again at Disney.

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Embracing The Vacation

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Travelling with MS can be overwhelming, especially if you are travelling to a new destination. Not knowing where the restrooms are or having a place to relax when your legs give way can cause a lot of anxiety for individuals with MS.  The unpredictability that comes with MS adds to the stress. Although unexpected hiccups can happen to anyone, planning your itinerary ahead of time will eliminate a great deal of anxiety. Below are some tips to keep in mind when you are planning for a vacation:

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How MS Messes with Speech

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One frustrating symptom of multiple sclerosis (MS) is the cognitive impact. Those of us with MS often struggle with memory, recall, and speech. When words vanish, we get creative in communicating! 

MultipleSclerosis.net posted the following prompt to the community:

“MS can mess with our word recall and speech function, making remembering the names of people, places, and things difficult. If only there was 1 word for it all. We want to know, what would your word be? Example: ‘Can you please hand me the _____ over there?’ Philadelphia natives might throw the word ‘jawn’ in there!”

There was a lot of engagement with this topic!

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Team MSAA and runDisney Participant Highlight: Tiffany McCahill 

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Completing a 10k endurance event last year wasn’t enough for Team MSAA participant Tiffany McCahill. She’s doing it again, but this time raising the bar and taking on the half marathon!  

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Staycation Tips and Tricks: Relax, Explore, and Enjoy Your Own Backyard

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Staycations, or vacations spent at home or nearby, can be both enjoyable and cost-effective. While they are often perceived as lacking adventure or being boring, this is far from the truth. Staycations can offer unique experiences full of discovery and exploration. A well-planned staycation can be convenient, creative, and can save both stress and money.

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Consejos y trucos para las vacaciones en casa: relájese, explore y disfrute cerca de su propio hogar

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Las vacaciones en casa o cerca de casa pueden ser agradables y económicas. Aunque a menudo se considera que carecen de aventura o son aburridas, no es así. Las vacaciones en casa pueden ofrecer experiencias únicas llenas de aventura. Unas vacaciones en casa bien planeadas pueden ser prácticas, creativas y ahorrarnos estrés y dinero.

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The AC Staycation

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As I’ve mentioned in previous posts, I’m a single mom of two young boys (5 & 6) and we live in St. Augustine, FL. It’s hot here. Really hot. Typically, May through October are well into the 90s, and bouncing from one airconditioned space to another is essential even for my non-MSers brethren. To be fair, I like to escape north to the Blue Ridge Mountains when I can, but that only happens once or twice a summer, so I’ve had to get creative on how to spend all of that indoor time. I’m not great at generalizing how I think you should fill your time, so I’ve decided to list out a few things I’ve found to be highly enjoyable as an artsy nerd mom.

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Beat the Heat While Staying Active

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Summer brings longer days and the perfect opportunity to enjoy outdoor activities. However, the heat can be a challenge, making it essential to find ways to stay active while remaining safe. Here are some tips to help you make the most of your summer workouts:

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Stay Active and Keep Your Cool

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As the summer heat continues to rise, staying active can be challenging, especially for those managing a chronic health condition like multiple sclerosis (MS). Personally, this summer has felt particularly hot. While staying active is crucial for our health, how can one exercise and keep moving when all they want to do is stay indoors and lie down in front of the fan? Here are some tips to help you remain active and thrive during the summer months:

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