Highlighting the MS Community This Holiday Season and Always

As we approach the season of giving, the Multiple Sclerosis Association of America (MSAA) would like to bring special attention to the many wonderful community members that we serve. With our mission of Improving Lives Today, MSAA genuinely strives to advocate for and prioritize the well-being of all individuals who have been affected by multiple sclerosis. Over the years, we have collaborated with so many inspiring people, and we are honored to be able to highlight their stories.                                             

In the spirit of the holiday season, we would like to share the heartfelt story of mother and son, Monica and Brian, who both live with multiple sclerosis.

“I’ve learned that in any situation, if you are not advocating for yourself, you’re not going to get anything. My name is Monica Proctor Wilson, and I was diagnosed with multiple sclerosis on my 40th birthday after spending several years seeking answers to my symptoms. For four or five years, doctors kept saying that it was fatigue, and that I was overworked and needed to take a break. I believed it was multiple sclerosis, and I started asking about it. People would ask me, ‘Why would you want MS?’ I did not want MS. I just wanted to know what was going on with me,” Monica shared.

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Progressing Through Heartache

By Samuel Fitch

As I write this on December 1, 2025, my mind turns to the year behind me. The first thought that rises is the people we lost. My mother passed away extremely unexpectedly on June 9. Her absence has sent a wave of grief through me, my wife, my four siblings, and her ten grandchildren. Yet as painful as it has been, I am grateful for what grew out of that difficult season. My brothers and sisters are now closer than we have ever been, and that closeness has carried us forward.

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Finding Balance: Navigating the Holiday Season with MS

For many people, the holidays are pictured as a “most wonderful time of the year,” filled with parties, gifts, and endless cheer. But for those living with multiple sclerosis (MS), the season often feels different. It can bring a complicated mix of emotions, ranging from genuine gratitude to overwhelming stress. If you find yourself dreading the calendar flip to December, you are not alone. By acknowledging both the darker challenges and the lighter joys, you can find a way to navigate the season that works for you.

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Sweet Dreams

Proper sleep is a quintessential part of functioning optimally. The average adult needs at least 7-8 hours of proper sleep. A loss of sleep can interfere with an individual’s ability to function at their full capacity, as it can lead to issues like confusion, irritability, exhaustion, and lack of energy. An individual with MS may often have issues with sleeping soundly. In addition to the general discomfort that they commonly experience, sleep disturbances can create havoc in a person’s body who has this condition.

Here are some tips to keep in mind that might help you get more shuteye when you hit the bed:

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Holiday Wellness Bingo Card

By Stacie Prada

Each year, the holiday season is a time of increased tasks, deadlines, and obligations. It can be stressful doing everything I need and want to do. Add managing my health issues with multiple sclerosis, and it can get overwhelming. I’d love it if the satisfaction of nurturing my health and sanity was enough to maintain healthy habits as its own reward, but it hasn’t been. Temptation abounds, and denying myself can feel punishing at times. I strive to enjoy both in healthy doses.

Over the years, I’ve trimmed down and streamlined seasonal tasks to reduce effort and stress. This year, I want to infuse fun with a Bingo card. By choosing items that support my personal goals and having a deadline to complete them, I’ll be more likely to do them.

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When MS Makes It Hard to See: Understanding and Coping with Vision Changes

Dealing with changes to your vision due to multiple sclerosis (MS) can be one of the scariest and most stressful things you face. It’s a core sense we rely on every minute, and any trouble with it can feel overwhelming. If you’re struggling, please know you are absolutely not alone. Your challenges are valid. As one forum member shared, dealing with vision issues can truly “mess with your head.”

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Here I Go Again

By Samuel Fitch

Ten years! After about ten years away from the gym, I decided to walk back in the door. In that time, I’ve been living with multiple sclerosis (MS) and staying active, but not in the way most people think. My life is full: busy professionally, engaged in the family business, raising four kids, and supporting a wonderful wife. That kind of activity keeps me moving, but at times it carries its own stress. 

About a month ago, I felt a strong pull to return to structured exercise, first to safeguard my cardiovascular health and then to gradually reintroduce weight training. Not for huge muscular gain, but to strengthen and preserve what I already have. My mother’s passing at age 65 from a ruptured brain aneurysm after decades of smoking played a major role in that decision. Seeing mortality up close made me realize I want to be here long enough to watch my grandchildren grow, to enjoy years with family and meaningful work. 

So each day I’ve headed to the treadmill. Thirty minutes, heart rate up near 150 beats per minute. The result has been therapeutic both mentally and physically. There’s pain in inertia but power in motion. 

For my fellow men and women living with MS, I know our journeys differ. Some face greater physical challenges, while others may have more flexibility or energy to work with. My belief is that doing something, even small steps with the ability you have, can still produce a meaningful impact on well-being. Research supports this truth. Studies show that aerobic and resistance exercise improve mobility, reduce fatigue, and enhance quality of life in people living with MS (National Institutes of Health). Even more encouraging, exercise in MS is considered safe and does not worsen disease activity when properly managed (Cleveland Clinic). 

If I had known how good I would feel simply by walking on the treadmill three times a week and steadily elevating my heart rate, I might have started sooner. But hindsight is a teacher, and the best time to begin is right now. 

So that’s the invitation: whether you’re managing MS or simply navigating the busy demands of life, choose to move. Protect your heart, support your brain, and honor those you’ve loved and lost by caring for the life you still have before you. 

Stay strong, inside and out. 

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Ashley’s Journey: Team MSAA and Ironman World Championship

In 2017, Ashley Norton received a diagnosis of multiple sclerosis and set a remarkable goal: to compete in the Ironman World Championship – all 140.4 miles of it.

This dream of swimming 2.4 miles, biking 112 miles, and running 26.2 miles naturally required her to manage significant challenges. As a single mother living with MS, she was navigating this new diagnosis and motherhood while also having undergone six heart surgeries and requiring two pacemakers due to lifelong heart complications.

Her journey was defined by resilience, persistence, and unwavering determination. This past October, Ashley achieved her goal by crossing the finish line at the Ironman World Championship in Kona, Hawaii. MSAA had the opportunity to speak with Ashley about her diagnosis, her journey to Ironman, and her experiences being on Team MSAA.

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Trying Your Best to Catch Some ZZ’s

Sleep…. This word can generate a mixture of feelings for many. Some people find it so easy to just lay their head down, turn off the inside chatter of their mind for a bit, and fall into a good snooze. But for others, sleep is a tease- a taunting pleasure just out of reach, and for various reasons. For those living with MS, it’s very common fatigue symptom can be in constant conflict with sleep. Those who need to rest but find they can’t, or getting sleep at unwanted/inconvenient times, etc. We know that sleep is extremely important for our minds and bodies, but it’s not always easy to attain. 

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Ask the Expert: Anxiety

Featuring Barry A. Hendin, MD

MSAA’s Chief Medical Officer

Headshot of doctor Barry Hendin, chief medical officer for MSAA

Barry Hendin, MD

Question: What are the symptoms of anxiety, and how does anxiety differ from depression?

Answer: It is common for people with and without MS to experience anxiety from time to time. Anxiety can be helpful in fact, alerting us to dangers around us or focusing our attention on stressors. Anxiety, however, can become more problematic when it’s severe, pervasive, and persistent. Then it becomes a disorder: generalized anxiety disorder. At that point, it distracts from our quality of life.

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