Here I Go Again

By Samuel Fitch

Ten years! After about ten years away from the gym, I decided to walk back in the door. In that time, I’ve been living with multiple sclerosis (MS) and staying active, but not in the way most people think. My life is full: busy professionally, engaged in the family business, raising four kids, and supporting a wonderful wife. That kind of activity keeps me moving, but at times it carries its own stress. 

About a month ago, I felt a strong pull to return to structured exercise, first to safeguard my cardiovascular health and then to gradually reintroduce weight training. Not for huge muscular gain, but to strengthen and preserve what I already have. My mother’s passing at age 65 from a ruptured brain aneurysm after decades of smoking played a major role in that decision. Seeing mortality up close made me realize I want to be here long enough to watch my grandchildren grow, to enjoy years with family and meaningful work. 

So each day I’ve headed to the treadmill. Thirty minutes, heart rate up near 150 beats per minute. The result has been therapeutic both mentally and physically. There’s pain in inertia but power in motion. 

For my fellow men and women living with MS, I know our journeys differ. Some face greater physical challenges, while others may have more flexibility or energy to work with. My belief is that doing something, even small steps with the ability you have, can still produce a meaningful impact on well-being. Research supports this truth. Studies show that aerobic and resistance exercise improve mobility, reduce fatigue, and enhance quality of life in people living with MS (National Institutes of Health). Even more encouraging, exercise in MS is considered safe and does not worsen disease activity when properly managed (Cleveland Clinic). 

If I had known how good I would feel simply by walking on the treadmill three times a week and steadily elevating my heart rate, I might have started sooner. But hindsight is a teacher, and the best time to begin is right now. 

So that’s the invitation: whether you’re managing MS or simply navigating the busy demands of life, choose to move. Protect your heart, support your brain, and honor those you’ve loved and lost by caring for the life you still have before you. 

Stay strong, inside and out. 

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Ashley’s Journey: Team MSAA and Ironman World Championship

In 2017, Ashley Norton received a diagnosis of multiple sclerosis and set a remarkable goal: to compete in the Ironman World Championship – all 140.4 miles of it.

This dream of swimming 2.4 miles, biking 112 miles, and running 26.2 miles naturally required her to manage significant challenges. As a single mother living with MS, she was navigating this new diagnosis and motherhood while also having undergone six heart surgeries and requiring two pacemakers due to lifelong heart complications.

Her journey was defined by resilience, persistence, and unwavering determination. This past October, Ashley achieved her goal by crossing the finish line at the Ironman World Championship in Kona, Hawaii. MSAA had the opportunity to speak with Ashley about her diagnosis, her journey to Ironman, and her experiences being on Team MSAA.

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Trying Your Best to Catch Some ZZ’s

Sleep…. This word can generate a mixture of feelings for many. Some people find it so easy to just lay their head down, turn off the inside chatter of their mind for a bit, and fall into a good snooze. But for others, sleep is a tease- a taunting pleasure just out of reach, and for various reasons. For those living with MS, it’s very common fatigue symptom can be in constant conflict with sleep. Those who need to rest but find they can’t, or getting sleep at unwanted/inconvenient times, etc. We know that sleep is extremely important for our minds and bodies, but it’s not always easy to attain. 

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Ask the Expert: Anxiety

Featuring Barry A. Hendin, MD

MSAA’s Chief Medical Officer

Headshot of doctor Barry Hendin, chief medical officer for MSAA

Barry Hendin, MD

Question: What are the symptoms of anxiety, and how does anxiety differ from depression?

Answer: It is common for people with and without MS to experience anxiety from time to time. Anxiety can be helpful in fact, alerting us to dangers around us or focusing our attention on stressors. Anxiety, however, can become more problematic when it’s severe, pervasive, and persistent. Then it becomes a disorder: generalized anxiety disorder. At that point, it distracts from our quality of life.

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Creative Thinking & Well-Being

By Stacie Prada

Being creative is generally accepted as a desirable trait, and the science supports it helps our well-being. When we look at our health physically, it’s often using objective measurements, lab test results, and diagnostic imaging.  They provide numerical measurements and data to compare ourselves to a healthy range for most people.

To capture emotional well-being, we use more subjective measurements that consider mood, worry, stress, happiness, and level of confidence we feel about managing our health. 

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When Creativity Finds a New Way

By Samuel Fitch

I wouldn’t consider myself a very creative person. But when I think back to my childhood, I remember being endlessly creative. I would make things out of cardboard, draw pictures for hours, and feel completely alive in that process. Back then, I truly believed I had a knack for art.

As I grew older, though, that creative spark seemed to fade. Life, responsibilities, and practicality took its place. Yet, I’ve realized creativity doesn’t disappear; it just changes form. For me, that form became journaling.

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Making the Most of Life After an MS Diagnosis

By Dr. Eva Jackson

Reflections on Life After Diagnosis

Over the past several years, I have had the privilege of hearing MS Warriors share their personal experiences following their diagnosis of multiple sclerosis. Their stories offer a unique perspective on how disease has influenced their lives.

For some individuals, the initial impact of MS was minimal, allowing them to maintain their routines and activities without significant disruption. However, for others—particularly those diagnosed during more advanced stages, the effects were much more profound and immediate, altering their daily lives in meaningful ways.

Despite these varying experiences, there is a shared understanding among all of us: the importance of making the most out of life while we can. This common outlook serves as a powerful reminder to cherish each moment and embrace opportunities for fulfillment, regardless of the challenges we face.

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Navigating Bladder and Bowel Dysfunction: A Community Perspective

Living with multiple sclerosis (MS) can be full of surprises. One of the toughest challenges for many people is dealing with bladder and bowel issues. These are things we don’t always feel comfortable talking about, but they’re a very real part of the disease. 

This article, which brings together stories and advice from people who are living with MS, is here to help you feel less alone and more in control. It’s all about sharing what we’ve learned to manage these often-secret symptoms.

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Back to School Success

As the school year has officially started, going back to school can be stressful for some families. Students may be battling stresses associated with academic performance, peer pressure, social anxiety, etc. On the other hand, parents are anxiously hoping that their children will have a productive year at school. It is important to set realistic expectations for your child and be prepared to anticipate challenges along the way. If you are a parent with MS, fatigue and exhaustion can hit any time. Planning and being organized is the key.

Here are some tips that can help alleviate stress associated with the transition back to school:

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Beyond the Usual: An Inside Look at Weird MS Symptoms

Beyond the Usual: An Inside Look at Weird MS Symptoms

While many are familiar with common multiple sclerosis (MS) symptoms like fatigue, vision problems, and muscle weakness, the reality for those living with the condition often involves a bizarre and sometimes baffling array of odd manifestations.

These “weird” symptoms can be unsettling, isolating, and even comical at times, highlighting the unpredictable nature of MS.

MultipleSclerosis.net asked its community members: “Have you ever experienced what you thought was a ‘weird’ symptom and wondered if others with MS have experienced it too?” Here’s what folks had to say:

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