Ask the Expert: Swallowing Disorders

Featuring Barry A. Hendin, MD 

MSAA’s Chief Medical Officer 

Headshot of doctor Barry Hendin, chief medical officer for MSAA
Barry Hendin, MD

Question: How can MS affect the ability to swallow and what treatments are available?

Answer: Dysphagia refers to any problem swallowing. This issue is common in a number of neurological disorders, including MS. It’s estimated that approximately one-third of people living with MS will experience difficulty swallowing or dysphagia at some point in their lifetime.

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Embracing The Vacation

Travelling with MS can be overwhelming, especially if you are travelling to a new destination. Not knowing where the restrooms are or having a place to relax when your legs give way can cause a lot of anxiety for individuals with MS.  The unpredictability that comes with MS adds to the stress. Although unexpected hiccups can happen to anyone, planning your itinerary ahead of time will eliminate a great deal of anxiety. Below are some tips to keep in mind when you are planning for a vacation:

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How MS Messes with Speech

One frustrating symptom of multiple sclerosis (MS) is the cognitive impact. Those of us with MS often struggle with memory, recall, and speech. When words vanish, we get creative in communicating! 

MultipleSclerosis.net posted the following prompt to the community:

“MS can mess with our word recall and speech function, making remembering the names of people, places, and things difficult. If only there was 1 word for it all. We want to know, what would your word be? Example: ‘Can you please hand me the _____ over there?’ Philadelphia natives might throw the word ‘jawn’ in there!”

There was a lot of engagement with this topic!

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Beat the Heat While Staying Active

Summer brings longer days and the perfect opportunity to enjoy outdoor activities. However, the heat can be a challenge, making it essential to find ways to stay active while remaining safe. Here are some tips to help you make the most of your summer workouts:

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Manténgase activo y fresco

Mantenerse activo puede ser un reto a medida que aumenta el calor del verano, especialmente para quienes padecen una enfermedad crónica como la esclerosis múltiple (EM). Personalmente, este verano ha sido particularmente caluroso. Aunque mantenerse activo es fundamental para nuestra salud, ¿cómo puedo hacer ejercicio y mantenerme activo cuando lo único que quiero hacer es quedarme en casa y acostarme frente al ventilador? A continuación, le ofrezco algunos consejos que le ayudarán a mantenerse activo durante el verano:

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Keep Moving

By: Stacie Prada

If you can’t run, then walk, if you can’t walk then crawl, stretch, or flex. Just keep moving.

Living an active lifestyle can be a challenge in the best of circumstances. Add living with multiple sclerosis symptoms such as fatigue, foot drop, and heat sensitivity, and it’s generally frustrating and takes more effort to stay motivated. Factor in adverse weather conditions, and it’s a huge undertaking to override the urge to be sedentary.

With MS, it’s common for symptoms to act up when the body temperature increases. That’s why hot weather is one of the many obstacles to staying active. When I was still learning how MS affected my body, it was scary when a jog led to body numbness from the neck down and an inability to control my feet reliably. Over time, I learned to differentiate between heat and exertion-induced pseudo-exacerbations that would subside within an hour or so after I cooled down and disease-progressing exacerbations that last much longer.

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Remaining Active in the Summer Heat

Exercise and staying active has so many benefits such as improved mental health and wellbeing. However, for many, the extreme summer weather we have been experiencing can make it hard to stay active. Heat sensitivity is a common problem among people with multiple sclerosis, often aggravating common symptoms.

Here are helpful tips on ways to keep your body cool and remain active this summer!

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To Drive or Not to Drive With MS

Living with multiple sclerosis (MS) changes many things in life. The impact of symptoms on the body makes certain tasks more difficult. For example, driving becomes more challenging as MS progresses. 

We recently asked the MultipleSclerosis.net community, “Has MS altered your driving habits?”

There were many insightful replies about how MS impacts whether and how a person continues driving. Some respondents still drive, and others do not. Here is some of the community’s perspective in their own words.

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Ask the Expert: Urinary Tract Infections

Featuring Barry A. Hendin, MD 

MSAA’s Chief Medical Officer  

Headshot of doctor Barry Hendin, chief medical officer for MSAA
Barry Hendin, MD

Question: Are urinary tract infections (UTIs) more common in MS, and what are the symptoms and treatments?

Answer: Yes, urinary tract infections are more common in people with MS. Multiple sclerosis is often associated with bladder dysfunction and bladder dysfunction is often associated with urinary tract infections. The most common bladder problem associated with infections is urinary retention, which is incomplete emptying of the bladder. This creates an ideal incubator for bacteria to grow. Patients who catheterize may also be at an increased risk, particularly if not careful with their bladder technique.

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Advice for Friends and Family Supporting Someone Receiving an MS Diagnosis

When a loved one receives a diagnosis of multiple sclerosis (MS), learning how to support them is vital. To learn what type of support people living with MS most value, we asked the MultipleSclerosis.net community:

“What advice would you give to friends and family who want to support someone receiving an MS diagnosis?”

The community shared lots of helpful insights!

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