Question: In MS, what would cause a very tight and sometimes painful squeezing around the body, or elsewhere, even in the hands or feet?
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With each new year, many people set goals and intentions for the best possible future.
Thinking about the new year means a lot of different things to people in the multiple sclerosis (MS) community.
To learn more about this, we reached out on the MultipleSclerosis.net Facebook page. We asked, “What is your biggest hope for your multiple sclerosis journey in 2023?”
The question received more than 300 comments. Here are the themes that emerged.
Continue readingBy: Doug Ankerman
2022 is over and you are already ankle-deep in 2023. What will this new year bring? No one knows for sure. But I believe you can give yourself an edge for the better with a few small, but subtle changes. Here are some ways to start…
And finally, MS never stops. Neither should you.
Well, I hope this helps. Here’s to your best in 2023!
Doug writes silly stuff about MS and other topics on his humor blog at myoddsock.com
By Stacie Prada
With each new year, I think about what’s ahead, what I can control, and what will make the next 12 months fulfilling for me. Instead of pushing myself to do more or be better, my approach this year for health management is to track what helps me manage my health with methods that are easy to use and visually informative.
Knowing what my body needs is an ever-changing puzzle, and tracking provides clues for what could be the cause or remedy for things contributing to health challenges. Add aging and menopause to living with Multiple Sclerosis, and knowing how to best manage my changing body is not easy.
Continue readingQuestion: What types of treatments and strategies are available to help someone with MS who suddenly develops visual problems?
Continue readingQuestion: How does psychological therapy, either alone or in conjunction with medication, make a difference for someone with MS who is experiencing depression?
Answer: This question highlights the fact that there is more than one approach to treating psychological problems. Anyone may experience depression, but this symptom is more common in people with MS. Much of this is biologically determined, meaning that depression in MS is often caused by changes in the central nervous system (CNS), but we’re also aware that situational problems may occur in anyone’s life, including those with MS.
Antidepressant medications from a psychiatrist (or other appropriate clinician) can be very helpful for the biological aspects of depression. But for many people, an additional benefit may be derived from psychotherapy or “talk therapy” with a psychologist or counselor. This psychological support can help individuals to develop strategies to navigate complex situational issues.
Beyond these professional interventions, there are several things that people with MS are able to do independently. For many, exercise can reduce depression. For others, mindfulness, yoga, or meditation may be helpful. And for everyone, focusing on the other aspects of wellness, which include maintaining a healthy diet and healthy social relationships, can’t be emphasized enough!
Please note that anxiety may occur along with depression and is also more common in the MS population. Many of the approaches to treating depression are also useful in reducing anxiety, but as with depression, this symptom should be diagnosed by a professional and treated accordingly.
Barry A. Hendin, MD is a neurologist and Director of the Multiple Sclerosis Center of Arizona. He is also Director of the Multiple Sclerosis Clinic at Banner University Medical Center and Clinical Professor of Neurology at the University of Arizona Medical School.
One of the hardest parts of living with multiple sclerosis (MS) is feeling like doctors do not fully understand or appreciate the extent of your symptoms. This is especially true if they consider only your MRI results. Sadly, this experience is common. Many people living with MS have worsening symptoms even when their MRI results stay the same.
To find out more, we reached out on the MultipleSclerosis.net Facebook page. We asked community members, “Have you ever had an MRI checkup that showed no noticeable changes, however you felt as if your MS was worsening?”
Nearly 400 community members responded! Here is what they shared.
Continue readingLiving with multiple sclerosis (MS) means dealing with flares. Flares occur when symptoms worsen for at least 24 hours. To be considered a flare, it also must occur 30 days or more after the last attack.
We wondered what cues your body gives you about flares. We asked our community on Facebook, “How can you tell that you are experiencing an MS flare?” We got more than 250 responses, so it is clear that there are many ways flares affect you.
Featuring Barry A. Hendin, MD
MSAA’s Chief Medical Officer
Question: What strategies can you recommend to help with cognitive issues?
Answer: First, let’s define cognition. Simply, it is all of the processes involved in learning, remembering, and expressing knowledge. It involves how we perceive, how we think, and how we convey knowledge verbally and nonverbally.
Although many people with MS, and at all stages of MS, express cognitive symptoms or problems, they are generally mild in nature. The most common complaints that I hear involve difficulties in memory, multitasking, learning new information, and processing speed.
Some cognitive changes may be due to MS itself. Often, however, the problems are due to, or are compounded by, other factors such as poor sleep, medication effect, pain, or depression. The first strategy, therefore, is to assess the contribution of mood, pain, medications, and sleep – and then treat them appropriately.
Continue readingThe day you receive a multiple sclerosis (MS) diagnosis can feel surreal. It is common to be in denial and want to ignore it. But over time, you start to see that your symptoms match what the doctor explained would happen.
For most people, there is a moment when they cannot deny their symptoms or their diagnosis anymore. And life goes on.
To find out more about what that moment looks like, we turned to the MultipleSclerosis.net Facebook page. We asked the community to fill in the blank: “You know you have MS when _____________.”
More than 250 people in the community responded. Here is what they said.
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