Living with a chronic illness, like multiple sclerosis, presents a unique set of challenges. Managing finances can be one of them, with medical expenses, reduced work hours, job loss, or unexpected expenses straining budgets and causing disruptions. Financial worries can impact our emotional and physical wellbeing, and building a support network of friends, family, and others living with similar challenges can offer much-needed support. I heard a quote once saying, “Start where you are, use what you have, do what you can,” and I couldn’t agree more. Be resourceful and think outside the box.
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Positivity, MS and AI?
By: Kate Durack
This month we are focused on staying positive while living with MS. I’ve written in the past about the positive outlook MS has provided me and I thought it might be interesting to pick the brain of someone (thing?) else on this topic to see if it generates anything new for me. So, I asked our new friend ChatGPT its thoughts on the matter. Here’s what it dished out:
Kate:
Why is it important to stay positive when living with multiple sclerosis?
ChatGPT:
Staying positive when living with multiple sclerosis (MS) is important for several reasons:
Continue readingMotherhood and MS
We all know a mother or mother-like figure in our life who demonstrates selflessness, resilience, and strength in all that they do. Mothers with multiple sclerosis especially, take on the unique challenge of navigating symptoms and flare ups, while also balancing being a mom.
Overcoming challenges as a mother with multiple sclerosis can be demanding, but also rewarding. It can become a balancing act between self-care and caring for your family, leaning on support, and being adaptable to accommodate flares and symptoms.
Continue readingNavigating Life with MS without My Mother
By: Stacie Prada
This is my truth. If my mom hadn’t died when she did, she would have been a comfort and helper when I was diagnosed with multiple sclerosis and felt so alone. She would have made a difference in millions of ways, but I’ll focus here on how being motherless relates to my MS.
I was diagnosed 15 years after my mom died. In hindsight, I’m certain that following her death I had an MS exacerbation characterized by extreme fatigue, depression, and surprising clumsiness. At the age of 23, I was executrix for her estate. It was a monumental responsibility organizing her funeral, managing her finances and legal affairs, selling her home, and dealing with everything a life suddenly cut short entails.
Continue readingReflections on Motherhood & MS
By Kate
My journey to motherhood was pushed into warp speed when I was diagnosed 8 years ago. In 2014, I had just gotten married and started having vision and grip issues which led to my eventual diagnosis of MS. Before any treatment was considered, my initial doctor (a lovely human) asked what it was I wanted for my life. I told him I wanted to be a mom. His response: “GREAT! You have 8 months to get pregnant, and if you don’t, I suggest we start treatment and reassess how and when to stop treatment in order to try again in the future.” This was good news, but like, no pressure, right?
Continue readingConnecting with Nature for Mental Well-being
Nature is such an important part of our world. While I am not fond of the bugs that call it home, I appreciate the beauty and all the resources nature provides. Did you know that nature can help us with stress management? This is known by a variety of names, including nature therapy, ecotherapy, and green therapy. Regardless of the name, it refers to the therapeutic benefits of spending time in nature.
Continue readingConectando con la naturaleza para el bienestar mental
La naturaleza es una parte muy importante de nuestro mundo. Aunque no me agradan los insectos que la habitan, aprecio su belleza y todos los recursos que nos proporciona. ¿Sabía que la naturaleza puede ayudarnos a controlar el estrés? Esto se conoce con diversos nombres, como terapia de la naturaleza, ecoterapia, o terapia verde. Independientemente del nombre, se refiere a los beneficios terapéuticos de pasar tiempo en la naturaleza.
Continue readingExercising and Moving With MS
So much can change in the body following a multiple sclerosis (MS) diagnosis. The toll MS takes on moving the body is significant. A forum on MultipleSclerois.net asked members for their insights to several questions:
- How has MS impacted exercise or bodily movement for you?
- Are there exercises or movements that seem to work really well for you and, alternatively, some movements that are difficult to do now?
- Have you had to modify any movements? If so, how?
- How do you set yourself up for success when moving your body?
There were many valuable responses!
Understanding and Managing Stress
April is National Stress Awareness Month, a time dedicated to raising awareness about stress, its impact on mental and physical health, and strategies to cope effectively. Stress is a universal experience that touches everyone at some point in life. Whether it stems from work deadlines, personal relationships, financial strains, or unexpected challenges, stress is a natural response that can often feel overwhelming. However, understanding stress and learning effective management techniques can empower us to navigate life’s ups and downs with resilience and grace.
Continue readingIncluding Stillness as a Fitness Goal
By: Stacie Prada
April is National Stress Awareness Month, and it’s a perfect reminder for me to check in with my stress level. It’s an extra busy month for me each year meeting professional and personal commitments while accommodating my health needs.
I recently did a 15-minute High-Intensity Interval Training (HIIT) workout, and I followed it with a guided meditation of the same duration. When I found myself needing more willpower to stay engaged during the meditation portion than I needed during the high-exertion portion, it occurred to me I really needed to work on calming my mind more.
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