Multiple Sclerosis Association of America Teams Up With SwimOutlet.com To Promote Swim For MS

The Multiple Sclerosis Association of America (MSAA) is pleased to announce its new partnership with SwimOutlet.com, the web’s most popular swim shop, to help promote the charity’s national fundraiser, Swim for MS. Serving as the distribution sponsor for Swim for MS, SwimOutlet.com will feature promotional information and ongoing updates on swim events through newsletter articles, targeted email campaigns, and posts on social media including Facebook and Twitter.

Supported by national sponsor Genzyme Corporation, Swim for MS is a unique fundraiser in which volunteers are encouraged to create their own swim challenge while recruiting online donations from supporters. Swim challenges can range from swimming laps for pledges to jumping cannonballs for cash. Swim for MS appeals to swim enthusiasts of all ages, social and community groups, students seeking volunteer service hours, and families enjoying their backyard pool. For more information and to register, visit SwimforMS.org.

“We’re incredibly pleased to support the MSAA by spreading the word of their Swim for MS initiative,” said Rob Penner, VP, Sports Marketing at SwimOutlet.com. “Together with the help of the aquatic community, they can continue to improve the lives of the MS community through their wide-range of services and programs.”

Adding additional awareness and excitement to the fundraiser, MSAA has enlisted the volunteer support of four-time Olympic gold medalist Missy Franklin to serve as the Swim for MS Ambassador. Franklin is featured in a series of flyers, brochures and a new national television public service announcement, encouraging individuals to participate in this exciting fundraiser which supports vital programs and services for the multiple sclerosis community. Starting in March, MSAA will award the top fundraiser of the month with an autographed photo of Missy, providing the minimum amount raised is $500.

“Swim for MS provides an individual or group the opportunity to combine one’s love of swimming with giving back to the community,” states Franklin. “Start your Swim for MS campaign today and make a difference!”

About SwimOutlet.com
SwimOutlet.com is the largest online specialty store for aquatics in the United States. The online retail store grew out of a dedication to providing the best goods and services to anyone interested in aquatic activities and sports. SwimOutlet.com has the largest selection for swimming, water polo, fashion, beach and surf! In addition to having an extensive selection and the lowest prices, SwimOutlet.com offers phenomenal customer service and fast shipping. The company has won the hearts of over two million happy customers who’ve helped spread the word on where to find the best deals.  It has quickly developed into the web’s most popular swim shop! For more information, visit http://www.swimoutlet.com.

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Mindfulness: A Special State of Mind

By: Dr. Miriam Franco

The term mindfulness is certainly getting much use these days. Such phrases as “be mindful”, “practice mindful meditation”, and “be in the moment” are interspersed in daily conversation across various areas of life. Yet many find it hard to really understand, in plain English, just what mindfulness really means.

Mindfulness is a particular conscious state of mind that, with practice, can sharpen certain mental faculties, processes and modes of awareness. It stems originally from Vipassana, one of the oldest of Buddhist meditation practices. In this practice, there is a direct and gradual cultivation of awareness. Over time, your attention is carefully directed to an intense examination of aspects of your existence. As you learn to relax and meditate, you learn to become attentive more and more to the flow of life experience. It is, in effect, a form of sensitivity training, a type of method of exercising your awareness. It engages attentive listening, full seeing and careful observation allowing you to be more present in the moment. Take in the particular features and aspects of experience as in smell more acutely, touch more fully and really pay close attention to what you feel.The purpose of becoming more mindful in this way is to learn to really pay attention without judgment and constant distraction.

Often we think we are doing this, but just as frequently this is an illusion. In a mindful state, we cultivate a special way of seeing reality. Instead of looking at life through a constant stream of concepts and thoughts or mental objects we mistake for reality, we learn to not get so caught up in endless thinking and let reality float by unnoticed. Rather than spending time being engaged in activity and distractions, pursuing an eternal path of pleasure and security, or fleeing from pain and unpleasantness, we train ourselves to ignore the constant urge to be more comfortable. It is often ironically stated in meditational practice that real peace comes only when you stop chasing it.

This state of mind can be achieved through meditation training or relaxation and sensory meditation training (Guided Imagery). In time, we slowly become more attuned and in touch with the way we actually are. Life has a much deeper texture if we bother to reflect on it and to look in at it in this way of practice. It’s a type of self-discovery process in which you observe your own experiences while participating in them as they occur. Over time, you find yourself observing things more the way they are flowing and changing and interacting with them more fully from moment to moment. This can add a relaxed, reflective attitude towards one’s self, others and life. This special mode of perception is called mindfulness.

*Dr. Miriam Franco is a psychologist in private practice in Wayne, PA and is a certified MS specialist and a Guided Imagery specialist. She also serves on the Health Care Advisory Council of the MSAA and is a Professor of Sociology at Immaculata University.

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Thinking of a Trip?

It is the season for romantic gestures, togetherness, and displaying affection with those you love. Maybe you have even considered planning a getaway or special trip. For many individuals with MS, booking travel can become complicated when special accommodations may be required. Ultimately, instead of excitedly anticipating your trip you may end up feeling that the planning process ends up being more time than it is worth.

The United Spinal Association (a member of the MS Coalition) offers a website with accessible travel needs in mind. Able to Travel http://www.abletotravel.org/ provides information on accessible tours, equipment rentals while you are traveling, and travel tips for booking accessible hotels and air travel.

So, if the last thing you need is more stress while planning your trip you may want to check out their website.

(Please note that Able to Travel is a program affiliated with the United Spinal Association and is not a program of MSAA).

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Let’s Just Stay in Tonight…

With the demands of today’s society we constantly find ourselves on the go. Always trying to complete some type of task or activity that’s required of the day, we sometimes run out of hours to set aside for the special people in our lives. We become busy with many other things so it’s easy to lose track of the time to spend with the significant other in your life. Making time for each other in a busy world is key. Continuing to go on dates, finding time to spend together, or even having a simple conversation can make each counterpart feel special and appreciated within the relationship. It doesn’t need to be something extravagant. Spending the night in just relaxing and watching a movie can be a perfect opportunity to share special moments together. It’s not the activity that’s important; it’s the simple act of being together that signifies affection.

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Ramapo College Swim Team Dives Into Action for the MS Community

Please take a moment to view this video the Ramapo College of New Jersey Swim Team made for their Swim for MS event! If you are in the Mahwah, NJ area on Saturday, February 2 stop by the college to cheer on the team in their final home swim meet of the season at 2 pm!

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Neuroplasticity

Although individuals with multiple sclerosis (MS) seem pretty clear on the idea that exercise is helpful in controlling some of the disabling effects of the disease, it always surprises me that there is less awareness of the opposite, that not exercising may actually make the disabling effects of MS worse.The combination of disuse, sedentary lifestyles, and inappropriate compensatory movements, leads not only to a loss of mobility, but may actually prevent the nervous system from undergoing reorganization that is a necessary part of functional recovery.

The idea that the nervous system is capable of specific change as a result of specific activity is referred to as neuroplasticity. Neuroplasticity means that a brain is capable of healing itself to some extent. When the activity that the person with MS performs results in functional improvements, it is called adaptive neuroplasticity, meaning that the brain changes itself in a positive way. However, if the person with MS engages in a sedentary lifestyle, performing little or no exercise or mobility activities, the brain will adapt to that as well. This is referred to as maladaptive neuroplasticity, and can lead to a worsening of disability. As a multiple sclerosis physical therapist, I try to make, as many patients as possible aware of the fact that there are consequences to immobility, and that avoiding it as much as possible will result in the best outcomes.

*Herb Karpatkin, PT, DSc is a physical therapist specializing in evaluation and treatment of persons with MS. He is a professor of physical therapy at Hunter College in NY, and owns a private practice specializing in MS treatment and care.

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Staying Active with MS

My exercising pursuits probably started at age one and a half when my foiled gymnastics routine failed to propel me out of the crib. Already I showed signs of being active and rambunctious and my “antics” did not stop despite stitches from my failed attempt. At age six my mother watched in horror as someone pointed to a young girl, her daughter, about to jump from the high diving board. Finally, at age eight she enrolled me in PAL (Police Athletic League), in an effort to allow me to channel my excess energy constructively.

I continued an active life style throughout my life, until I was diagnosed with MS.

In August of 2009 I was training for my first half marathon when I was diagnosed with RRMS. The diagnosis came as a shock to me because I was not only fit but maintained a healthy lifestyle.  The news, was a shock to me and I wasn’t sure how to cope.

After the diagnosis I shut everyone and everything from my life, including running and working out. I could not envision going for a run and collapsing from an MS episode. I truly had no idea what to expect but I had anticipated the worst of what could happen.  I couldn’t go to the gym and have my ego remind me of what I could no longer do.

As I struggled with the disease I became increasingly depressed. In the past, running would always assuage any crisis I had to face; I no longer had that outlet to release my depression and frustrations.  It was a catch 22 – if I went out for a run I could collapse (in my mind) and if I didn’t I would sink further into an abyss that I had created.

It took months for me to realize that I had hit a wall built not out of mortar but fear and indecision. MS had already proven to me that I would not have the same life that I had enjoyed in the past. So, why could I think that I could easily go back to my “old” form of exercising?   Reluctantly I had to give up starting off at the high diving board and had to wade into the kiddy pool instead.

And so as my frame of mind changed so did my temperament and condition. I started jogging slowly, almost at a walk, and much less distance than I was accustomed to. I had no delusions of grandeur, only of building up my courage and stamina at whatever pace I could manage at the time.

I also changed to a gym that had a pool.  Swimming was an activity that I had not done since I was a kid.  I wasn’t strong but I just wanted to get into the pool and swim a few laps at a time. The warmth of the water me gave me the impetus to stay in longer and achieve a little more each time. There was a familiar and safe emotional sensation that would flood my senses as the memories that I had as a kid, swimming in Puerto Rico and the JCC (Jewish Community Center), would come to the surface.

My legs finally started getting stronger and my attitude shifted to one of jubilance. I became more positive about the future and my life with MS. I realized how much I missed exercising. It had always been such an important part of my life. But more so, the endorphins that were released while I worked out had a positive impact on how I felt.

I also realized that it didn’t take much for me to fulfill the joy that exercising once brought me. It was as simple as exercising with light weights, going for a walk, or aerobic swimming.

I didn’t have to try to set out to break any type of record. I needed to listen to my body when it was telling me that it was as important to exercise my body muscles as it was the brain muscles. If I didn’t use them they would atrophy, as they were already doing. And, when my body was tired I needed to heed and do less.

My “baby step” routine continued until I was finally able to run my first half marathon last year and four months later completed an 817 mile hike through the Arizona Trail.

We all have different compositional make ups. Our MS symptoms are different and so we need to tailor our activities according to our capabilities. Any form of exercise, at our own pace, is instrumental to our physical and emotional and well being.

Please note: If you are looking to start any new exercise routine you should first consult with your physician.

 

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Service is a Smile.

To give is to receive…..as a student I was taught to avoid cliché’s like this in my writing. However, I’ve found that phrases like this stick with us because so often they are true! Giving does feel good, and this isn’t just my opinion. There has been a great deal of research in the last decade showing that people who volunteer and give of themselves have a greater chance of being happy and healthy than those who do not.

In a review of research on the health benefits of volunteering, published by the Corporation for National and Community Service, several of these studies are cited. Giving of ourselves is shown to increase our sense of purpose, self-esteem and life satisfaction while decreasing feelings of depression. Studies that looked at volunteering by those with chronic illnesses found that those who volunteered achieved greater health benefits than those who relied on medical treatment alone. Service goes beyond the obvious benefits to the community group being served. It benefits the giver.

As we continue our January themes of wellness and self-care, this seems like a win-win to me.

On Monday we will celebrate the spirit and generosity of Martin Luther King, Jr. Dr. King believed we all had a duty to serve others and that through our collective actions, social problems could be solved. In 1994, Congress declared the Martin Luther King, Jr. Holiday as a day of service. Rather than taking the day off, we are encouraged to find ways, big or small, that we can give, benefitting our community and ourselves.

What are your plans for this day of service? Keep in mind that not all service requires a great deal of time or money. Kindness can fill a need as easily as dollars. There are many ways to volunteer or serve:

  • Donate your time
  • Make a monetary contribution
  • Make a purchase from a company that supports charitable causes
  • Consciously send positive, healing thoughts to someone

Perform random acts of kindness: smile at a stranger, hold the door for someone, or joyfully give directions

Volunteering can be fun as well. If you are looking for a great way to involve your friends and family in service, try MSAA’s Swim for MS. Take time on Monday to plan your Swim for MS event. Whether you are swimming laps or playing inner tube water polo you can raise awareness and funds while receiving the benefits of exercise and laughter – a true win-win. No longer will the cliché be “give until it hurts,” but rather, give until it feels good!

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Presenting MSAA’s Artist of the Month for January 2013

 

MSAA is very proud to present our 2012 Art Showcasecelebrating the work of artists affected by MS.

January Artist of the Month:

Chenne Richardson – Columbus, OH

 “I have always used art as my muse. But, I never dreamt that one day it would become my salvation. In the beginning I can recall the pieces being heavy, dark, desolate, full of fear and anger. Basically being reflective to how I felt. Now 10 years later you can see the emergence of light and color emitting from each piece. I never thought in my wildest dreams that one day I could or would find peace living with MS. But today that is exactly what I have.

There is life after MS…”

Danceacrylicsoncanvas

Be inspired – please send an online card featuring artwork by MS artist Chenne Richardson and spread awareness of MS and MSAA.

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Self-Awareness

So we’ve again encountered the infamous month of January, a time well known for resolutions and changes that people promise and strive to achieve to mark the beginning of a new year. Individuals find themselves embarking on new exercise regimens, dietary guidelines and lifestyle changes that they hope to keep for the duration of the year. With these changes comes a responsibility of self-awareness; to know and understand one’s limitations and to remain accountable for self-care. It is difficult at times to try and keep track of your activities and the goals you set for yourself. Perhaps for this new year you can keep track of these things in a notebook or journal to help stay in tune with the plans you made for yourself for the upcoming year…

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