Moments Matter

Posted on November 13, 2024 by MSAA

By Stacie Prada

Have you ever been in a mood and had something happen that changed it in a moment? It happens a lot, and some moments stick through the years.

I recall being at work years ago, and cheerfully saying, “Good morning!” They responded quickly and sharply, “What’s good about it?”

I don’t remember how I responded then, but I still think about how it startled me. I felt like I’d done something wrong, and I wasn’t sure what. My mood swiftly dropped from happy to resentful. This memory helped me learn the life lesson that we’re all living different experiences, and lots of interactions have nothing to do with us.

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Morning Pain and MS

Posted on November 4, 2024 by MultipleSclerosis.net

Navigating pain is a consistent challenge with multiple sclerosis (MS). Nights are often not restful. Many with MS wake in pain. It is challenging to move first thing in the morning.

MultipleSclerosis.net members recently engaged in a discussion about morning pain. Here are some of the insights they shared.

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Ask the Expert: Sleep Issues

Posted on October 28, 2024 by MSAA

Featuring Barry A. Hendin, MD

MSAA’s Chief Medical Officer

Barry Hendin, MD

Question: What types of problems most often interfere with sleep for individuals with MS?

Answer: High quality sleep is generally recognized as an important health benefit for everyone, and this is especially true for people with MS. Poor quality sleep can increase MS symptoms such as fatigue, pain, daytime sleepiness, anxiety, and depression, as well as difficulties with memory and concentration. Unfortunately, more than half of those with MS have some kind of a sleep disorder or sleep dysfunction, which is a higher proportion than for those in the general population.

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Look Forward to Something

Posted on October 11, 2024 by MSAA

By Stacie Prada

Fall where I live means shorter days, less sunlight, more rain, and colder weather. I realized after my Multiple sclerosis diagnosis, that seasonal shifts to spring and fall are times when I’m more susceptible to MS exacerbations. I used to worry about it, and it’s taken a lot of effort to feel more confident approaching seasonal changes.

My usual approach is:

When things are tough, take inventory of what’s tough, what will help, and what’s helped before; and
Look forward to something.

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Self-Care on the Wings of a Goldfinch

Posted on September 30, 2024 by Kate

I’ve already written this blog post once and I’ve decided to scrap it. This is a page one rewrite. My initial post was preemptive. I was writing about something I had yet to experience and now I’m on the other side. Isn’t it funny how much we can project onto something that is yet to be? Better to live in the present, but what a challenge that is for me.

Our topic this month is self-care, and my ultimate self-care starts with a 20-year desire and ends in a goldfinch. On Friday the 13^th I got a tattoo of a goldfinch on my forearm. It’s not my first tattoo and probably won’t be my last, but this little guy is the most meaningful to date. The goldfinch is a symbol of finding happiness in challenging times. It is seen as protective, devoted, persistent, and carries good fortune on its wings. What more could you ask for in a little cheerleader when you’re living with MS? It may seem strange that I consider this new addition to my skin as self-care, but I can’t honestly think of a more direct way to honor and treat myself.

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Fear of Falling With MS

Posted on September 23, 2024 by MultipleSclerosis.net

A concern for many people with multiple sclerosis (MS) is the fear of falling. Loss of balance with this disease makes falling a common problem. But many find that slowing down, walking carefully, and learning to get up safely after a fall can be helpful.¹

MulipleSclerosis.net recently published an article that highlighted some of these trials. Given the reaction it received, it clearly resonated with lots of people! Here are some of the themes that people shared in response to the article.

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Digital Detox: How to Unplug and Prioritize Your Wellbeing

Posted on September 13, 2024 by Claudia Chavez

Is it just me, or does it seem like everything is digital nowadays? Whether I’m scheduling an appointment online, texting a friend, or ordering groceries, it feels like our world has become a virtual reality, with my phone as a constant companion. While technology offers undeniable convenience and benefits, it can negatively impact our emotional and physical well-being. A digital detox—a break from technology—can help us reconnect with our bodies, thoughts, feelings, and loved ones in a more meaningful way.

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Prioritizing Self-Care

Posted on September 11, 2024 by Courtney Merker

September is National Self-Care Awareness Month, a time dedicated to recognizing the importance of taking care of yourself. In a world that’s constantly on the go, it’s easy to overlook our own needs in the rush to meet deadlines, care for others, and manage daily responsibilities. However, self-care is not selfish – it’s essential for maintaining mental, emotional, and physical well-being.

Self-care looks different for everyone. For me, my favorite form of self-care is going for a walk while listening to a podcast or audio book. Whether I’m winding down after a long day or just taking a break, the combination of fresh air and engaging content always help me recharge! It’s a simple way to create space for myself and reset my mind.

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Team MSAA and runDisney Participant Highlight: Ashlei Brown

Posted on September 9, 2024 by Dana Carney

Four years ago, Ashlei Brown ran her first endurance event as part of Team MSAA. The view was about as good as it could get – EPCOT.

In July, Ashlei shared her struggles with a severe MS flare that she experienced in 2020.

“2020 I was in the biggest episode of my life, hardly able to walk. I was stressed about moving my family across state lines from Florida to Tennessee into unfamiliar territory with no extended family to lean on… in the middle of COVID. My MS is completely under control now, thanks to the amazing people at @VUMChealth.

I think it’s time to run again for @MSassociation”

We wanted to hear more about Ashlei’s journey with Team MSAA, and what inspired her to run again at Disney.

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Embracing The Vacation

Posted on August 23, 2024 by Teena Palathanam

Travelling with MS can be overwhelming, especially if you are travelling to a new destination. Not knowing where the restrooms are or having a place to relax when your legs give way can cause a lot of anxiety for individuals with MS. The unpredictability that comes with MS adds to the stress. Although unexpected hiccups can happen to anyone, planning your itinerary ahead of time will eliminate a great deal of anxiety. Below are some tips to keep in mind when you are planning for a vacation:

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