Fall Into Your MS Health Journey

Posted on October 13, 2022 by Emily

By Emily Gordon

The change of seasons is exciting for most, but for those living with MS, it can be a daunting time. The weather is getting chillier, which means for some of us, our spasticity is kicking in. The extreme fatigue can reach an all-time high, and cognition can begin to suffer.

The colder months ahead can cause a bit of stress regarding the uncertainty of your health. Tremors, numbness, tingling, trouble with balance, issues with cognition… OH BOY! It can be nerve-racking to have to think about all these things. I have picked up a few things throughout my 10-year MS journey that have helped me manage these symptoms.

Get moving

You could find it more difficult in the coming months to get moving. Daily movement is not only good for your body, but it is also great for your mind. Take time to enjoy the season! Get outside for a walk if you are able and take in the beauty of autumn and the colorful foliage. Or stay indoors and do some stretching and/or yoga. An MS diagnosis does not mean you need to stop living. It is a time to START living. Enjoy the little things in life!

Boost your mood

Every morning I meditate. I take 10 minutes before everyone in my house wakes up to just BE. Be still, be present with my thoughts, set my intention for the day, and be mindful of my emotions. Living with a chronic illness – can bring rough days, be mindful of these rough days and feel what you need to feel, whether it be frustration or sadness.

Be proactive and productive

It is so easy to fall into a rut. I have used the “I’m too tired” statement one too many times. The truth is yes, I was tired, however, I have learned in this journey that being “too tired” and not doing anything will only make you more tired. Fatigue is unfortunately a big part of battling MS. I know my limits and sometimes I do have to say, “I’m too tired” and rest. But on the days my body and mind can afford to get ready, put some makeup on, get dressed and have a wonderful time are always the times I am glad I pushed through my fatigue.

Stay on top of your health

Write down when you are experiencing a new symptom and talk to your doctor about it immediately. Be conscious of even the slightest change in speech, mobility, or balance. In 2020, my infusion center had to shut down due to the pandemic. I was behind on my disease-modifying treatment by 2 months. I woke up one morning and was unable to swallow, move the left side of my body, or speak. I spent two months in the hospital and 12 weeks (about 3 months) in rehab teaching myself how to walk, talk and write again. MS is completely unpredictable and changes in your health can happen overnight. Take it from me. Be your own patient advocate, since after all, no one knows you better than well… you!

MS has been a part of my life for a decade. It has certainly never been easy. This disease is extremely unpredictable. I will leave you with a saying I use when I am having a rough day.

“It is not about the cards you’re dealt, but it’s about how you play them.”

PLAY WISELY.

Recreationally resting and leisurely relaxing…

Posted on August 21, 2019 by MSAA

By Scott Cremeans

The idea of relaxation is simply subjective as everyone has their way of finding a happy hiatus. Some people find a benefit in working on tasks that they enjoy, yet others need to stop working altogether to find pure relaxation. Specific individuals need the assistance and support of good friends to find absolute cessation. Countless people require total solitude to attain relaxation, while many desire groups of friends to achieve an immersive intermission.

There is the idea of enjoying Continue reading →

Sound Advice

Posted on August 16, 2019 by MSAA

By Doug Ankerman

I’m a sound guy. I like to listen (though my wife would disagree). My affinity comes from a long background working in radio. Using words, sound effects and music to evoke emotions – that was my gig. It also helps having ears the size of a satellite dish. And no, I cannot get Direct TV – hardy har har.

Since relaxation is the August theme of MS Conversations, I found it fitting to compile a list of Continue reading →

Strategies to Relax: Kick Back with MS

Posted on August 12, 2019 by MSAA

By Lauren Kovacs

That’s funny, relax with MS. Like being drawn and quartered is relaxing. It is possible, I think, to kick back. We often hear about not relaxing and it’s negative effects. Easier said than done. I know.

For me, I relax by trying several things. First, don’t beat yourself up. MS stinks for us all. Just acknowledge that fact. Distraction is a great way to relax.

I admit to putting myself in a “show-hole” frequently. I fall into those Continue reading →

The Value of Doing Nothing: Same Thing, Different Feel

Posted on August 9, 2019 by MSAA

By Stacie Prada

It’s interesting to me that the same task can feel stressful sometimes and relaxing others. It really shows that it’s not about what I’m doing, rather it’s how I feel when I’m anticipating or doing it. It’s how I judge the task in the moment.

Needing to cook dinner after a long workday may feel like one more burdensome thing that needs to be done, while spending hours in the kitchen baking or creating a new dish on a weekend might be a therapeutic activity resembling meditation for the focus and relaxation I feel.

The same can be true for Continue reading →

A Women’s Retreat

Posted on July 22, 2013 by Becky Remington

For the past 6 years, as a Regional Director for MSAA, I have done many patient and professional healthcare provider education programs, on many diverse topics related to MS. But my favorite programs are those aimed specifically for women with MS. We recently had a Women’s Retreat in Sheridan Wyoming, and 30 women with MS shared a very special weekend of fun, relaxation, education and friendship.

MS specialists like Amy McKay, a nutrition and exercise guru from Texas, shared dozens of tips to help maintain a high quality of life by trying to incorporate movement, healthy eating, balance in life, and finding- and sharing – happiness. The weekend included group discussions, new friends, and a chance to discover hidden talents and create a beautiful summer wreath. Add in the chick flick movie on Saturday night and you couldn’t find a happier group of women!

Of course we also learned about the newest MS therapies, and how to use the MSAA SEARCH program to determine, with your neurologist, the best course of treatment for each individual.

It is always hard on Sunday afternoon to say goodbye to all the new friends I have made at the retreats, and I see that sentiment echoed throughout the room. Many friendships, support groups and walking buddies are started during those three days!

When we have a women’s retreat in your neck of the woods, I hope you will consider signing up. We would love to have you!

FOLLOW MSAA ON: