It’s the morning of my MRI scan and neurologist appointments. Leading up to them, I’ve anticipated needing to seek support and to allow myself time to process whatever I learn today. I tell myself that test results don’t change how I’m doing. They just give me more information to consider.
The rub is that I anticipate being sad with any possibility today. I feel worse than I did earlier this year. Eight months ago, I learned Continue reading →
Wow, hard to be thankful when MS is a greedy robber. MS has taken so much from us MS folks. The line of…”it could be worse” is never, ever to cross anyone’s lips.
That being said, it is important to find things daily to be thankful for. No matter how small. From those who are in pain and bedridden to the newly diagnosed. Bedridden folks might be thankful for sheets. Others might be thankful for being able to still walk.
Heat will do it. Being unable to get around easily will do it. For so many people living with Multiple Sclerosis, there are many reasons to think twice about going on vacation. It can seem like too much work for not enough payoff.
To find out how the Multiple Sclerosis community is finding ways to vacation that truly work, we reached out on the MultipleSclerosis.net Facebook page. The question we posed to the group is: “Are there any vacation spots that you would recommend as being ‘MS-friendly?’”
In true keeping with not quickly remembering the lessons I’ve already learned, it took me a few months of building frustration before seeing a situation I’m experiencing as something I could approach differently.
I volunteer for our local self-help group, and increasing work and personal health demands are making it harder for me to continue doing everything I’ve done for the past six years. I’d asked for volunteers to help. Some stepped forward and I appreciated their help, but still I felt responsible for more than I can continue.
I went through many years of a deep dark depression that enticed me to see just how close I could get to the edge. This game of chicken between the darkness and the light stole my thirties from me and cannot return the years that were taken. This onslaught occurred as the angel and devil on either shoulder taunted me with a ruthless game of truth or dare. Although this atrocity would not stop, the bold brutal battle did not come to the desired conclusion of the dark side. The following is what helped me, and hopefully, others can Continue reading →
Mental wellness is often overlooked by MS folks and those around us. I am not saying for others to walk on eggshells, but mindfulness is something we all need to remember. Mental wellness is trying and knowing when to seek assistance.
The saying, “… if you have nothing nice to say…” This goes for negative self-speech too. Try to speak words of affirmation to yourself. Be your own cheerleader. Try at least.
Living with multiple sclerosis, I find I repeatedly need to accept my diagnosis and reality. I have moments where I feel great and totally at ease with my health, life and possible future decline. Other times I have symptoms ramp up, and frustration and fear can leave me rattled.
I’ve been living with my diagnosis ten years, have likely had MS at least another 15, and Continue reading →
MSAA is very proud to present our 2015 Art Showcase – celebrating the work of artists affected by MS.
We have received many wonderful submissions from across the country and are delighted to share their work and their stories with you. Please visit our MS Art Showcase online gallery to view all of the new submissions.
September Artist of the Month: Barbara Hall – Jersey Shore, PA
About the Artist: “I believe this is my fourth year entering the MSAA Art Showcase. I continue to take painting classes and hope that I am making progress. My MS might have affected my handwriting but not my paintbrush! I hope to continue to paint through 2015. I am honored to be included with all these talented artists.” Read more