Zephyr

By Chernise Joseph (Zivvy)

Anxiety. I’m full of that right now.

It’s pretty common, but it still feels like something you’d see in a horror movie: it sneaks up on you, there’s some loud, dramatic cue of music, and then suddenly whatever else you’re doing feels irrelevant because now you have to run from It.

Tonight, I sat outside with my friends and watched the tree canopies above us get caught up in the wind. It’s a cool, breezy night Continue reading

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Take the Time to Feed Your Creative Self

By Maria Sammartino

Art has always been a part of my life and who I am. Growing up we didn’t have the luxury of “just watching TV.” My grandparents were both artists and made sure when we were with them, we either had a pen, crayon, paint, knitting needles, or crochet hook in our hands. Thankfully for us, they made sure our hands were always busy and we were creating something.

My grandmother was Continue reading

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Multiple Sclerosis and Communication Issues

A woman and man are having a conversation. The man has his eyes closed and is talking as a paragraph of lines comes out of a speech bubble. The woman's eyes are wide with a broken speech bubble as a completely empty thought cloud lingers over her head.

Although many people think of multiple sclerosis as primarily a diagnosis with physical symptoms, its reach is far more extensive. Since MS begins in the brain, it can impact one’s ability to communicate – namely, it often impairs memory and speech.

To find out more about the speech and memory challenges community members deal with, we reached out to members of our Facebook community and asked “Do you ever suffer from communication issues and expressing yourself with MS?”

More than 550 community members shared. Here is what was said. Continue reading

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Reluctant to Change

By Doug Ankerman

Multiple sclerosis has been, and continues to be, the best disease I could ever have!

(More on this later.)

When it comes to change, I have been reluctant, even rebellious, my whole life.

Strange places, new faces, different situations make me Continue reading

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The Tsunami

By Chernise Joseph (Zivvy)

Lately, I’ve been obsessed with tsunamis.

I know how that sounds, tsunamis aren’t the friendliest natural phenom to be fascinated by, but I think that’s why they’ve caught my attention like they have.

When I think of change, I think of tsunamis. Consider this: tsunamis are the perfect representation of change, not only because they have the ability to change lives in seconds, but because they’re water. Continue reading

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Slow Change and Sudden Shifts: Zooming Out to Gain Perspective

By Stacie Prada

Slow change can be really tough to handle. Its gradual and persistent nature can disguise itself as normal and stable. Only when it reaches a threshold or shifts might we feel the results.

I’ve been living with multiple sclerosis unknowingly and knowingly for almost thirty years, and in the last 12 years I’ve known lesions in my spinal cord are the root cause of pain and my body malfunctioning. I know my body is damaged from MS, I sense where it’s going, and yet Continue reading

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The Changes

By Lauren Kovacs

I was blessed that I went years without big changes. By the time my youngest was in  second grade, I had to use a cane and a walker a few months later. The change snake bit me again a few years later.

A wheelchair became my new fashion accessory. I like crazy shoes so, I applied that to my assistant devices. My chair is Continue reading

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And The Beat Goes On…

We are a just a few months shy of seeing the end to 2020, and I don’t know that that’s necessarily a bad thing. To say that we’ve encountered our fair share of change this year is a massive understatement. The entire world shifted, and we essentially had to alter how we live and interact with one another. It was a change we didn’t see coming, but one that we had to adjust to quickly. We were given no choice and had to modify our day to day and try to make the best of an unpredictable and uncertain situation. Not unlike Continue reading

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Relaxation with Multiple Sclerosis

By Chernise Joseph (Zivvy)

It’s Friday, August 14th on another sauna of an afternoon in Texas. I’m hot, yes, but there’s something else to it, too: I’m stressed.

After a moment, I push away from my work desk and decide to shift gears. It’s been an eventful few months, but I’d learned fairly quickly that corona wouldn’t matter if my atria weren’t functioning right. So, I take a break and call a good friend of mine. Continue reading

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The Rx for Stress? It Depends.

By Stacie Prada

Stress is one of the many symptoms that come with living. It isn’t a root problem, although it can feel like one. Stress is the indication that there is something else going on, and it isn’t always bad. The excitement of an upcoming event causes stress, and I wouldn’t want to skip over the feelings of anticipation and accomplishment that come with looking forward to or working hard for something.

That said, it would be great Continue reading

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