Mental Health and Wellness

By Chernise Joseph

I’ll be real with you, for this month’s topic I struggled to come up with something that felt at least a little optimistic, but then I realized my best response is just to be honest.

Mental health is a tricky thing to discuss. For one, everyone’s story with both mental health and multiple sclerosis is different. There are some of us that are lucky enough not to struggle much with either, but the older I get, the more I realize those sorts of people are rarer than I realized. All my life, I’ve heard how “everybody’s going through something,” and my response was almost always “but they aren’t going through what I’m going through!” as if that somehow validated how I felt despite never actually feeling any better.

Here’s the thing with mental health: just like multiple sclerosis, it’s an invisible ailment in many people and that, to me, is the most unfair part of struggling with either because I’ve noticed the empathy factor from others in the world drastically lowers when you’re able to smile and–to them anyway–you “look okay.” Side note: I’m definitely including myself in that critique, especially pre-MS.

Three weeks ago, Texas did everything it could to put my mental health to the test. Yes, the entire state of Texas decided to perform some sort of survival exercise to see if we’re all prepared for the apocalypse, apparently. In southeast Texas where I live, the temperature rarely drops beneath 30 during our coldest days in winter. We’ll get some snow flurries here and there, but otherwise “moderate” would be a generous descriptor for the 3 months of winter we get each year. However, February decided to deliver a one-two (three, four, five…) punch and not only give us single digit days, but also complete it with snow and ice. I like to think of Dante’s icy layer of hell when I describe what happened that week to people because I had no idea cold could be so awful.

I’ll set the scene: I’m caring for my ailing mother, the temperature is steadily dropping outside, and all at once, the power goes out. It’s around 11AM on Monday at this point and we’re hearing reports from family members that their electricity is out, too, and they’re at least an hour away in Houston. It wasn’t a local thing, it was everywhere. Immediately, panic sets in. The snow has started to fall outside, and the temperature has as well, though we were thankfully still in the double digits. I call a close friend for help because already I’m beginning to see cars collide outside from the icy layers forming on the street. We’re Texan, y’all. We barely know how to drive in the rain.

My mom and I decide that calling an ambulance for her would be the best plan. She’s medically fragile and we knew the hospital would at least have power and nurses who could care for her. The medics arrive and I had to beg them to ignore COVID procedures and allow me to ride with her to the hospital. They agree and let me sit up front. While they’re loading her into the back, I overhear on their radio that all ambulances would be grounded at 5PM. At least in the town where I reside, we were going to be on our own through the night… I think it hit me right then that this wasn’t just a sit around and have hot cocoa situation.

The hospital wasn’t as nice as the paramedics and I couldn’t stay despite the winter storm. Luckily, I have a group of nice friends with big trucks who took a break from delivering firewood to come and pick me up. By then, the snow had started to fall harder than I’ve ever seen before, and we were ice skating through the city trying to figure out a game plan. We drove through town and saw dozens of people dressed up in snow gear roaming the streets in search of warmth just like we were. The power was out permanently it seemed and none of us had planned for that. I think back on it now and forgive myself because there wasn’t a right answer to the situation despite knowing, logically, that a little snowstorm shouldn’t have felt like the apocalypse.

The next few days are a blur for me. We huddled around a friend’s fireplace and ate what we could find while the power and water were down, charging our phones either in the car or in the brief moments when the lights would come back on. It was chaos for everyone, but I think the lesson I got from it was how our mental health can either suffer or improve dependent on how we choose to look at things, not the other way around. That week from hell, its new moniker if I do say so myself, was awful and I won’t try to sugarcoat it. I was lucky to be safe and warm, but I was also fortunate to be surrounded by people with positive attitudes and optimistic outlooks despite how bleak things got.

It was during that week that I experienced the importance of being present again. With the world quite literally frozen over, there wasn’t anything else to do but sit and just be. I got a chance to not think of anything and just sit and cuddle my cat (who had taken up residence in my friend’s bathroom) and wait for life to return to some semblance of how it was, if not changed because of the people who helped me during one of the hardest times of my life.  

*Born in the heat of Texas, Chernise Joseph is an avid writer with perpetual writer’s block. She was diagnosed with MS in 2016 and has been on the ride of a lifetime ever since. Read more from Chernise on her blog millennialwithms.com.

Resiliency is a Powerful Tool

No secret here-life can be very unpredictable a lot of the time. It can be messy and chaotic and ever-changing. But even after a year filled with such challenge and turmoil as 2020, it’s incredible to see how resilient people are and can be. Yes, life and the changes experienced can have its ripple effects. Impacting not only physical health, but mental and emotional health as well. But it’s how people adapt and overcome these hurdles that helps foster improved wellness of the entire body.

Resiliency, among other aspects, can be an extremely powerful tool when it comes to mental health care and wellness. Learning to adapt to difficult situations and continuing to strive forward despite them helps build resilience. And the great news is-this is a skill that can be learned and taught. Whether it’s teaching yourself the skillset or working with a professional for guidance, building resilience is an important key to overall wellness.

There are different components used to help nurture resiliency, with two crucial ones being self-compassion and self-care. Being kind to ourselves and our bodies is so important for both mental and physical health. This helps to decrease issues with anxiety, stress, and depression. Practicing mindfulness, surrounding yourself with others who support you, and taking care of yourself physically are all key parts to resilience skill-building.

I think many of us would agree that taking time for ourselves and thinking about our own health and well-being usually falls towards the bottom of our daily agendas. This is something that we can all start to do better with. Because taking care of ourselves helps validate that we can take care of others around us too.

Resources for Mental and Emotional Wellness

Anxiety and depression are among the most common symptoms associated with multiple sclerosis. It can be challenging trying to navigate through life with a disease that affects both your body and your emotions. In this blog, I’d like to share some helpful resources for mental and emotional wellness. I want you to know that if you find yourself battling anxiety and depression, there are resources available to help you manage and improve your mental and emotional wellness.  Continue reading →

Caring For Your Mind and Mental Health

A common misconception with MS is that the disease affects the body mostly in just the physical sense. This can be true for many diagnosed. However, one’s mental health may be impacted as a result of MS too. MS and its unpredictable nature can create a roller coaster of emotions, changes, and ups and downs for those affected. That kind of ride can impact all parts of one’s mind and body. Understandably so.

It’s not always easy to recognize or bring attention to Continue reading →

It’s in the Contract

By Doug Ankerman

Mental wellness? Wait. When given my MS diagnosis years ago, all talk centered around the physical side. No one mentioned anything about the mental challenges of MS.

For this reason, I renege my contract with multiple sclerosis! (Wish it was that easy, right?)

Mental wellness with MSFact is, in my experience, mental wellness is WAY harder to manage. I have AFO’s to help with foot drop. A rollator to Continue reading →

Deciding What I’ll Do and How Much I’ll Do for My Best Health

By Stacie Prada

In true keeping with not quickly remembering the lessons I’ve already learned, it took me a few months of building frustration before seeing a situation I’m experiencing as something I could approach differently.

I volunteer for our local self-help group, and increasing work and personal health demands are making it harder for me to continue doing everything I’ve done for the past six years. I’d asked for volunteers to help. Some stepped forward and I appreciated their help, but still I felt responsible for more than I can continue.

I was getting frustrated, and resentment was building. I was getting Continue reading →

Booting the Mental Devil

By Scott Cremeans

I went through many years of a deep dark depression that enticed me to see just how close I could get to the edge. This game of chicken between the darkness and the light stole my thirties from me and cannot return the years that were taken. This onslaught occurred as the angel and devil on either shoulder taunted me with a ruthless game of truth or dare. Although this atrocity would not stop, the bold brutal battle did not come to the desired conclusion of the dark side. The following is what helped me, and hopefully, others can Continue reading →

I Can Try

By Lauren Kovacs

Mental wellness is often overlooked by MS folks and those around us. I am not saying for others to walk on eggshells, but mindfulness is something we all need to remember. Mental wellness is trying and knowing when to seek assistance.

The saying, “… if you have nothing nice to say…” This goes for negative self-speech too. Try to speak words of affirmation to yourself. Be your own cheerleader. Try at least.

Having been a Continue reading →

It’s OK to talk about it…

Mental Health - Let's Talk

In (very) recent years, mental health and wellness have become more talked about and recognized in mainstream society. It’s discussed more openly than ever before. To be honest, we’re not too far beyond the days where it was ‘taboo’ to talk about mental health publicly.

Old Times

Few would ever think to disclose Continue reading →

Physical and Mental Wellness

By Lauren Kovacs

Ok fine!

I admit that denial of MS and its friends mental and physical stress is a battle. They go together and share equal importance. One affects the other. I had unknowingly adopted both.

Years of mental struggle and talk-therapy led me to medication eventually. I am not one to rely on pills. I try several options, before I let pills win. Anti-depressants are, for me, a must now.

I take a teeny-tiny dose, but it helps. It gets Continue reading →