A Love Letter to My Younger Self

By: Emily Carlin

Understanding life with a chronic disease diagnosis is a long-term experience. For me, it took years to come to terms with the fact that I have MS. The journey was not easy but looking back I am proud of myself for how I handled that situation so early in my adulthood. 

For some background, I was 23 when I was diagnosed with MS. Unfortunately, I am very familiar with how this condition can impact your life, as some of my family members have lived with MS for many years. To write this piece, I’m going to take you on a little journey with me. Join me as I take you back to the time when I was first diagnosed as I pretend to take myself out for coffee as the 35-year-old woman, wife, and mother I am now.

I asked my younger self out to coffee. She showed up with glowing skin, long hair, vibrant, and full of life. She was also well rested (darn, I was jealous of that, being I’m now a mom of two toddlers). She asked me how my day was going with a cheerful smile. I paused for a second, I looked right in her eyes and told her she was beautiful before I answered. I softly smiled, and told her my day was going well, but I had some things I’d like to share with her.

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Burdens Shared

By Stacie Prada

March is MS awareness month, and it’s a good time to reflect on the lessons I’ve learned while navigating life with Multiple Sclerosis for 16 years. Of all of the lessons I’ve had to learn, the hardest has been accepting my MS is not just my problem.

When I was diagnosed with MS, I firmly wanted to be able to deal with it myself. I saw it as my problem, and I didn’t want it to affect those around me. I saw it as solely my responsibility, and I thought it would be unfair for me to let it burden anyone else.

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You Got This!

Receiving a multiple sclerosis (MS) diagnosis can be overwhelming, but it’s also the beginning of a journey where you can take charge of your health and future. While MS comes with uncertainties, empowering yourself with knowledge and a proactive mindset can make a world of difference. Start by educating yourself about MS through the Multiple Sclerosis Association of America (MSAA). Understanding your diagnosis helps you make informed decisions about treatment, symptom management, and lifestyle changes.

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Numbness and Tingling With MS

One common symptom of multiple sclerosis (MS) is feelings of numbness and tingling. Most often, this symptom affects the hands or feet. It makes everyday tasks more difficult. Holding a toothbrush or standing to cook is challenging when hands and feet go numb.

MultipleSclerosis.net recently shared an article on this topic. Many community members shared their experiences with these symptoms.

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Beat the Heat While Staying Active

Summer brings longer days and the perfect opportunity to enjoy outdoor activities. However, the heat can be a challenge, making it essential to find ways to stay active while remaining safe. Here are some tips to help you make the most of your summer workouts:

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Stay Active and Keep Your Cool

As the summer heat continues to rise, staying active can be challenging, especially for those managing a chronic health condition like multiple sclerosis (MS). Personally, this summer has felt particularly hot. While staying active is crucial for our health, how can one exercise and keep moving when all they want to do is stay indoors and lie down in front of the fan? Here are some tips to help you remain active and thrive during the summer months:

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Manténgase activo y fresco

Mantenerse activo puede ser un reto a medida que aumenta el calor del verano, especialmente para quienes padecen una enfermedad crónica como la esclerosis múltiple (EM). Personalmente, este verano ha sido particularmente caluroso. Aunque mantenerse activo es fundamental para nuestra salud, ¿cómo puedo hacer ejercicio y mantenerme activo cuando lo único que quiero hacer es quedarme en casa y acostarme frente al ventilador? A continuación, le ofrezco algunos consejos que le ayudarán a mantenerse activo durante el verano:

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Surviving Summer

This summer has been incredibly hot across the nation. Possibly due to global warming. Heat waves have been unusually common this year. Staying active in summer can be a challenging task but there are ways you can beat the heat. With some of the tips below, these tips may ensure you are able to continue with your daily routines and exercise regimes. 

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Keep Moving

By: Stacie Prada

If you can’t run, then walk, if you can’t walk then crawl, stretch, or flex. Just keep moving.

Living an active lifestyle can be a challenge in the best of circumstances. Add living with multiple sclerosis symptoms such as fatigue, foot drop, and heat sensitivity, and it’s generally frustrating and takes more effort to stay motivated. Factor in adverse weather conditions, and it’s a huge undertaking to override the urge to be sedentary.

With MS, it’s common for symptoms to act up when the body temperature increases. That’s why hot weather is one of the many obstacles to staying active. When I was still learning how MS affected my body, it was scary when a jog led to body numbness from the neck down and an inability to control my feet reliably. Over time, I learned to differentiate between heat and exertion-induced pseudo-exacerbations that would subside within an hour or so after I cooled down and disease-progressing exacerbations that last much longer.

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Remaining Active in the Summer Heat

Exercise and staying active has so many benefits such as improved mental health and wellbeing. However, for many, the extreme summer weather we have been experiencing can make it hard to stay active. Heat sensitivity is a common problem among people with multiple sclerosis, often aggravating common symptoms.

Here are helpful tips on ways to keep your body cool and remain active this summer!

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