What Others Should Know About MS

Living with multiple sclerosis (MS) is full of challenges. Those without MS may not realize the ways the disease impacts life. 

MultipleSclerosis.net recently asked members of the community to “Fill in the blank: I wish more people understood ____ about MS.”

There were many insights from the responses!

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Start Where You Are, Use What You Have, Do What You Can

Living with a chronic illness, like multiple sclerosis, presents a unique set of challenges. Managing finances can be one of them, with medical expenses, reduced work hours, job loss, or unexpected expenses straining budgets and causing disruptions. Financial worries can impact our emotional and physical wellbeing, and building a support network of friends, family, and others living with similar challenges can offer much-needed support. I heard a quote once saying, “Start where you are, use what you have, do what you can,” and I couldn’t agree more. Be resourceful and think outside the box. 

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BLT Hot Dog

Making a BLT Hot Dog is as simple as making the classic BLT sandwich. This fun twist is sure to please hot dog lovers. You can add additional toppings if you like, such as avocado and onion. This could also make for a fun topping bar at summer cookout. Give it a try!

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Positivity, MS and AI?

By: Kate Durack

This month we are focused on staying positive while living with MS. I’ve written in the past about the positive outlook MS has provided me and I thought it might be interesting to pick the brain of someone (thing?) else on this topic to see if it generates anything new for me. So, I asked our new friend ChatGPT its thoughts on the matter. Here’s what it dished out:

Kate:

Why is it important to stay positive when living with multiple sclerosis?

ChatGPT:

Staying positive when living with multiple sclerosis (MS) is important for several reasons:

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Strength in Numbers

Life is strange, isn’t it? It can be overwhelming, complicated, and confusing to understand. Mix it with unexpected occurrences and difficulties, and it can feel nearly impossible to navigate at times. Despite the myriad of emotional turmoil life may cause, there is always one underlying truth – there are millions of other individuals trying to figure it out just like you are. Of course, we all face different circumstances and feel various emotions, but at the end of the day, we are all navigating how to get by and be happy. Happiness, whatever that personally looks like, is the commonality that we all are looking to achieve. And there is plenty of it to go around.

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Yes, And

As usual, time slipped by me and before I knew it, we were already days into June.

It’s a common enough routine: laughing with colleagues or strangers and saying, “Can you believe it’s June already?” or “I forgot it’s not May!” Usually, this conversation ends with a chuckle, perhaps a little added hustle to catch up on work, but ultimately no trouble.

But there are some months that are just more stressful.

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Nancy Garcia – June 2024 Artist of the Month

MSAA features the work of many talented artists affected by multiple sclerosis as part of our annual MSAA Art Showcase. Each month we share these artists’ inspiring stories and beautiful artwork with you as our Artist of the Month. This month, we celebrate Nancy Garcia as June’s Artist of the Month. Nancy is from Chicago Heights, IL.

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Motherhood and MS

We all know a mother or mother-like figure in our life who demonstrates selflessness, resilience, and strength in all that they do. Mothers with multiple sclerosis especially, take on the unique challenge of navigating symptoms and flare ups, while also balancing being a mom.

Overcoming challenges as a mother with multiple sclerosis can be demanding, but also rewarding. It can become a balancing act between self-care and caring for your family, leaning on support, and being adaptable to accommodate flares and symptoms.

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Navigating Life with MS without My Mother

By: Stacie Prada

This is my truth. If my mom hadn’t died when she did, she would have been a comfort and helper when I was diagnosed with multiple sclerosis and felt so alone. She would have made a difference in millions of ways, but I’ll focus here on how being motherless relates to my MS. 

I was diagnosed 15 years after my mom died.  In hindsight, I’m certain that following her death I had an MS exacerbation characterized by extreme fatigue, depression, and surprising clumsiness. At the age of 23, I was executrix for her estate. It was a monumental responsibility organizing her funeral, managing her finances and legal affairs, selling her home, and dealing with everything a life suddenly cut short entails. 

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Grilled Shrimp Skewers

These grilled shrimp skewers deserve a place at your Memorial Day cookout. Marinated in a yummy lemon and garlic mixture, they’re packed with flavor. Plus, they come together in a snap making them the perfect addition to any grilled menu.

15-20 minutes is all the time you will need to prepare them!

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