About Claudia Chavez

My name is Claudia Chavez, and I am the Manager of Mission Delivery at MSAA. I am bilingual in English and Spanish and hold an Associate of Arts in Psychology, a Bachelor of Social Work, and a Master of Social Work. Outside of work, I enjoy spending time with friends and family and dedicate much of my free time to rescuing and helping animals in my community. I take great pride in making a positive impact through my work, and helping others brings me immense joy.

Prepare, don’t despair

Emergencies are sudden and uncontrollable. They can’t always be prevented, but having a plan to tackle them head-on can make a difference in the outcome. It is easy to forget the most well-known information in times of crisis. There are many ways to prepare for an unexpected situation, and creating a plan that is tailored to your specific needs is crucial. Let’s talk about different ways to prepare.

Keeping our medical records easily accessible in case of an emergency is vital but carrying them all the time can be impractical. The Rocky Mountain Multiple Sclerosis Center offers customized Multiple Sclerosis Identification Cards to individuals living with MS nationally. This card lists vital information, including the individual’s name, address, and emergency contact on one side and common MS symptoms on the back. This card may be useful in an emergency, as it can easily be stored in your wallet, your car, or your luggage and accessed in case of an emergency.

Keeping your emergency contact information at hand can also be done using your phone. You can set an emergency contact and list medical conditions through the Medical ID feature on your iPhone. This can help first responders access lifesaving medical information from the lock screen without needing your passcode. There are also options for other smartphones, such as Android.

For those of us with children, pets, and other loved ones we care for, an emergency can disrupt our schedules and impact those we love. Having a plan can ensure that they are taken care of while we are taking care of ourselves. Keep a record of your children’s school, teachers, extracurricular activities, and schedules. Provide a key to a trusted friend or relative to access your home if needed. Have the necessary supplies for your pets for a couple of weeks and make them easily accessible for friends and family who may be helping care for them.

Keep a packed bag with your essentials if you leave your home rapidly and unexpectedly. Keeping a sealed bag with a change of clothes, medication, and personal supplies may come in handy if you don’t have time to pack or your loved one needs to meet you at the hospital. I like including a comfort item that can bring me peace and comfort at a time of crisis, like a picture of a loved one or a small stuffed animal that has sentimental meaning.

For those who may need additional support at home, a medical alert system may provide the necessary protection to ensure someone responds in case of an emergency. These systems allow an individual to activate a device or press a button in the event of an emergency, and they are especially beneficial for those who live alone or have mobility difficulties.

Emergency planning is all about preparing for and responding to emergencies. Communicating with our loved ones about our needs and discussing their availability and willingness to help is vital to creating a reliable plan. Unexpected situations can be scary, but emergency preparedness can provide peace of mind knowing there is a plan for you and your loved ones.

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Plan, Prepare, and Enjoy the Trip!

Are you planning a trip soon? Sure, getting to the destination is beautiful and all but what about all the planning that goes into the trip? Between the research, packing, reservations, and cost, traveling can be exhausting.  Nothing beats an amazing vacation, but how do we make sure we are prepared for it all?

If you are anything like me, you will most definitely forget to pack something (and end up looking like a tornado tossing around the luggage to find it). Traveling with MS can be easy when you are prepared and have a contingency plan.

Here are some tips that can make your trip run as smoothly as possible.

  • Depending on your destination and needs, it may be a great idea to request a doctor’s note listing your medications and any specific medical needs you need accommodations for.
  • Bring the necessary storage devices, such as a cooler for injections, a needle clipping device, and storage must-haves.
  • Consider your medication dates if you take a DMT. For example, work around your infusion date.
  • Call the hotel in advance to verify the hotel has a refrigerator in the hotel room, or request a refrigerator for your room if you have medication that requires refrigeration.
  • Bring a list of your providers’ contact information just in case.
  • Bring extra medication in case you accidentally misplace it or damage it.
  • If you are traveling by air, you may contact the Transportation Security Administration (TSA) for additional information and to familiarize yourself with the Air Carrier Access Act (ACAA) that protects against discrimination.
  • Find MS support when traveling abroad by visiting the Multiple Sclerosis International Federation directory.

Knowing what to expect when traveling can ease your worries. Multiple Sclerosis doesn’t have to weigh you down. Don’t let anything stop you from taking that dream vacation you have always wanted. Plan, prepare, and enjoy the trip!

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Enjoy yourself, you deserve it.

It’s no secret that summer can be debilitating for those with MS. The heat and humidity can be a nightmare for so many of us. While everyone experiences summer differently, I think we can all agree that it’s important to plan head to ensure we are as comfortable as possible during these summer months.

Being prepared is more than bringing water, an umbrella, or a cooling vest. Being prepared also means understanding your limits and respecting them. It can be difficult to skip plans or cut them short when we need a break. It’s okay to sit down under the shade when our body is getting overheated. It’s okay to sit back and relax while friends and family continue with certain activities on their own. It’s okay to turn down plans when we know certain events will not sit well with our bodies. It’s okay to put your needs first.

Modifying certain activities can allow us to enjoy the outdoors this summer. Feel comfortable voicing your opinion when choosing a vacation destination, planning the activities for the day, or simply choosing the hotel bed closest to the air conditioner. Your voice matters.

Here are some things to keep in mind this summer:
• Do your research on the weather and humidity of the area.
• Notify your family and friends that you may need more breaks or downtime to relax.
• Declining to go to an event or activity you do not want to participate in or may be physically detrimental is self-care.
• Have fun and relax!

Summer is typically a time for fun and excitement and it’s easy to get wrapped up in the fun and forget that our bodies might need a bit more rest. Sharing your needs and feelings with your friends and family may help come up with a plan to ensure that everyone is safe and comfortable.

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Accept what is, let go of what was, and have faith in what will be

Acceptance is easier said than done sometimes. It can be difficult to fully acknowledge the difficulties that we are facing, especially when they are out of our control. Whether it be a new diagnosis, a relapse, or the progression of multiple sclerosis, change can be hard. Denial, fear, anger, and sadness are normal emotions that can arise during this time. For those struggling to manage these intense emotions, know that you are not alone.

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Wellness at Every Stage

Wellness is important at every age, especially for those with MS. While our needs naturally change over time, self-care becomes increasingly important as we enter the later stages of life. Aging is uniquely personal. While some may still have the mental and physical capabilities that have kept them independent, others may need additional support to complete daily tasks. Understanding our needs and having access to supportive services and devices can make a difference in our quality of life.

Mobility and independence go hand in hand. Having the necessary equipment may allow an individual to remain living independently for as long as possible. As we age, our balance and physical strength decline. While exercise and physical activity are typically recommended to stay healthy, falls may be a frequent concern. Mobility devices and assistive technology may assist with daily tasks, but sometimes specialized equipment may be needed to fully meet an individual’s needs. While MSAA’s Equipment Distribution Program offers equipment such as walkers, canes, and grab bars, some people may require additional specialized devices to fully meet their needs, such as Hoyer lifts and hospital beds. Occupational therapy and physical therapy may help evaluate our needs and help us adapt.

Daily living activities may be especially challenging for those who may be experiencing cognitive decline or don’t have care partners for assistance. Homecare may offer in-home services to help with these tasks, such as light housekeeping, laundry, and meal preparation. A limited support system may also impact socializing. The benefits of socializing are undeniable. It keeps our minds active and is important for cognitive functioning and our emotional well-being. Adult daycare services may be a great resource for those who would like additional social activities outside their home. These services are provided to older adults in a community setting and typically offer a range of events and activities like trivia games, painting, or group conversations.

Planning becomes increasingly important when taking into consideration the specific needs of someone with MS. It can be overwhelming to deal with medical expenses, housing modifications, transportation, and other unexpected costs. Navigating health insurance and Social Security benefits can be complicated, and becoming familiar with government benefits and local and national organizations may ease some of the stress.

For those who would like to explore their local resources, consider the following:

  • Center for Independent Living: For those looking for additional support and resources, your local Center for Independent Living may be able to offer a variety of services to promote the independence of people with disabilities and those who are older. Services may include information and referral, independent living skills, individual and systemic advocacy, and equipment loan closets. The ILRU Directory of Centers for Independent Living (CILs) and Associations can be found by visiting https://www.ilru.org/projects/cil-net/cil-center-and-association-directory.
  • Eldercare Locator: The Eldercare Locator is a public service of the U.S. Administration on Aging that connects you to services for older adults and their families. Their specialists can assist with information about support services, housing, elder rights, insurance and benefits, health, and transportation. The Eldercare Locator can be accessed by visiting https://eldercare.acl.gov/Public/index.aspx.
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Slow But Steady Wins the Race

February has arrived, and we are one month into our new year’s resolution journey. Let’s face it, it can be difficult to keep the motivation we once had. While I had the best intentions to get up every morning and go for a walk, some days I didn’t feel like changing out of my pajamas, and that is okay.

The momentum that developed in January suddenly started slowing down as the month passed. While I started my new year’s resolution in full force, I have noticed my motivation fluctuating as of late. Surely, I’m not alone. Many of us have experienced our motivation decline as the year goes by. It’s not uncommon to lose track of our original goal and slowly fall back into old habits. What can we do when this happens? And how can we retain that excitement and focus we once had?

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Shoot for the moon. Even if you miss, you’ll be among the stars.

Every January, most of us ask ourselves and those around us, “What is your new year’s resolution?” But why is this a thing? Is this simply a tradition, or is January truly the ideal time to establish goals for the rest of the year?

New Year’s Day serves as a clean slate. It is such a popular time of year to evaluate our goals because it represents a reset button, a fresh start that has the potential for greatness. My personal new year’s anthem is the song Feeling Good by Nina Simone. Regardless of the intended meaning of this song, the lyrics speak to me around this time of year.

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Embracing Change During the Holidays

Traditions, especially during the winter holidays, are a significant part of our culture. For many of us, traditions bring a sense of connection and comfort. They represent consistency and hold great meaning and purpose. But how do we keep a tradition alive when things are ever-changing?  

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May the Simple Things Bring You the Most Joy

Coffee in hand on a snowy day.

The holiday season can be filled with so much excitement. Families gather to celebrate, many take pride in decorating their homes, cooking becomes a marathon event, and last-minute shopping can be unavoidable. I truly enjoy the holidays because it brings people together and kind gestures are plentiful. The generosity seen during the holiday season is inspiring, and no act of kindness is too small. It is easy to get wrapped up in the hustle and bustle of the holidays and lose track of the true meaning behind our traditions.

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Where did the sunshine go?

Big tree and leaves signifying that Fall has arrived, reflecting the title of this blog "Where did the sunshine go?"

Fall has arrived, and it brings many beautiful changes. The cooler weather is typically a welcomed change, comfort food is readily available, and trees change their color to all sorts of gorgeous shades of red, orange, and brown. I personally love the pumpkin overload and watching the rain while sipping on a cup of coffee, but many others find this time to be the cause of sadness, anxiety, and even dread. For many, this drastic change in weather and the holiday season can mean unwelcomed feelings and a need to be extra gentle with ourselves.

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