Being An MS Warrior

Being diagnosed with MS can be disheartening news for many since the road ahead can be so scary and unpredictable. If left undiagnosed, it can lead to severe disability over time.

It is of utmost importance that you schedule your appointments with your neurologists and other care providers regularly so that they can help with managing your symptoms and keeping your MS at bay. The high costs associated with the treatment make medical coverage crucial as over time, MS may unfortunately place a financial strain on individuals and families. Fortunately, there are organizations like the Multiple Sclerosis Association of America (MSAA) can direct you to valuable resources while navigating the bumps along the way.

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Balancing Health and Career: Key Insights for Those New to MS

A new diagnosis of multiple sclerosis (MS) can be overwhelming, with the potential to disrupt nearly every aspect of our lives, including our career and financial stability. MS symptoms vary widely from person to person, so each individual’s experience can be unique. A new diagnosis marks the beginning of a period of learning, adjusting, and navigating changes. While health becomes the central focus, it’s important to recognize that many other aspects of life are also affected. Concerns about career, job stability, and financial security often arise as we try to find balance in this new and uncertain reality.

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MS Awareness Month Program Highlight: My MSAA Community

As we continue to highlight MS Awareness Month this March, the Multiple Sclerosis Association of America (MSAA) remains dedicated to raising awareness of multiple sclerosis while also providing vital resources and support for the community. MSAA recognizes that this month is especially powerful for the MS community as we reflect on how far we’ve come, the challenges that remain, and the importance of supporting one another. In honor of this special time, MSAA would like to bring attention to the many free programs and services offered that are designed to improve the quality of life for those affected by MS. One of the many free tools MSAA provides is My MSAA Community, a peer-to-peer online forum for individuals with MS.

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You Got This!

Receiving a multiple sclerosis (MS) diagnosis can be overwhelming, but it’s also the beginning of a journey where you can take charge of your health and future. While MS comes with uncertainties, empowering yourself with knowledge and a proactive mindset can make a world of difference. Start by educating yourself about MS through the Multiple Sclerosis Association of America (MSAA). Understanding your diagnosis helps you make informed decisions about treatment, symptom management, and lifestyle changes.

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Hurricane Helene Resources

The devastation from Hurricane Helene has affected millions of people in the Southeast and has resulted in widespread damage. Many people have lost their lives, communities have been destroyed, families have been displaced and essential services have been disrupted. Recovery and restoration from the aftermath of the hurricane is going to take a long time. Considering the recent impact of Hurricane Helene, the Multiple Sclerosis Association of America (MSAA) has compiled a comprehensive list of resources to assist with emergency preparedness and response.

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Priorizando nuestro bienestar durante la época festiva

La época festiva puede ser abrumante. Aunque disfruto de comprar, cocinar, decorar y pasar tiempo con mis seres queridos, esto puede dejarme agotada y exhausta. La temporada festiva representa alegría y celebración, pero la vida tiene una forma de desafiar nuestros planes e intenciones. Cuidarnos es fundamental para disfrutar al máximo de esta temporada.

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MSAA Focuses on MS at All Stages of Life During MS Awareness Month

March is Multiple Sclerosis Awareness Month and MSAA is excited to present four full weeks of valuable and inspiring resources, programs, and strategies for all ages! We are dedicated to spreading awareness, education, and support to individuals, families, and care partners in the MS community, and this month is no different. Our MS Awareness Month initiatives focus on “Life with MS: Different Stages of the Journey” and include a multitude of programs that address MS management in all life stages.  

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Shaping the MS Experience: Getting MRIs

A part of the MS experience includes getting routine MRIs. This process can be both daunting and expensive. Did you know that MSAA’s MRI Access Program provides financial assistance for Cranial and C-Spine MRIs?

MSAA’s MRI Access Program assists with the payment of Cranial (brain) and C-spine magnetic resonance imaging (MRI) scans for qualified individuals who have no medical insurance or cannot afford their insurance costs and require an MRI to help determine a diagnosis of multiple sclerosis or evaluate current MS disease progression.

What does the program offer?

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Yes…It Counts

I think we can all agree that this Election season has seemed much longer than most. While tomorrow may bring an end to the commercials, debates, and political satire on late night TV (for at least 3 years), it is imperative to remember how important this actually is. Voting has been around officially in the US since 1789 when a then-small number of eligible individuals voted in our first President, George Washington, and his right hand men. Since then we’ve sworn in 43 people to serve in the capacity of President and tomorrow we’ll elect number 44.

While it may feel like it at times, we aren’t helpless in what happens; and while not everyone may be satisfied with the outcome tomorrow, being part of the conversation is up to each and every one of us. Voting is our shot, an opportunity for us all to have a say in who governs our cities, counties, states, and country. While everyone has their own reason for voting for their choice, individuals living with disabilities or chronic illnesses have a vested interest in what comes next and whom our elected officials are. These officials will be responsible for upholding our benefit system, enacting our budgets for public transportation, and charged with making decisions on expanding or ending needed services. They’ll be some of the loudest voices for where research dollars go and be in the room where it happens, as conversations determine the fate of programs and plans that impact our healthcare system.

vote3“Where” or “Who” can you ask questions of, you might ask? On Election Day many disability rights organizations are available by phone to help answer voter questions regarding issues that impact disability services. You can contact your local disability rights advocacy group to learn more about how you may be impacted by the pending election. Also, here are a few tips in regards to getting out to vote:

  • Make Sure You’ve Registered! Many states have specific times when you must register to vote in advance. If you missed the deadline this year, make sure to register in advance for future elections.
  • Confirm your poll location! Call ahead to your city or county government office and ask for information on accessible transportation, opening/closing times, available parking, or any other needed updates on your polling place.
  • Get the phone number! Find the contact number for your State Office of Protection and Advocacy, and bring it with you when you vote. If you run into any barriers such as lack of accessible transportation to the polling site, physical accessibility of the building itself, problem in accessing the voting equipment, or understanding your rights, this is who you can contact. This is also the office that can advise you of your rights in general under the ADA.

I know you might be thinking ‘Does it really matter if I vote?’ YES, Yes It Does. You don’t want to be the person asking ‘What’d I miss?’ or wonder later on what impact your vote could have had. Exercise your right to vote on November 8th. The world and history has its eyes on us, let’s make sure we all do our part to elect our next administration.

Bonus Points if you know how many references to Hamilton are included in this blog. But more seriously, get out and vote tomorrow November 8th…Your Vote Counts!
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Long-Term Care Insurance

Have you looked into a Long-Term Care insurance policy?

Long-Term Care refers to help that people with disabilities or chronic, long-lasting illness need over an extended period of time. The type of help needed can range from assistance with simple activities to care provided by nurses, therapists and other professionals.

Some services that might fall under long-term care insurance are:

• Providing you with assistance in your home with daily activities, such as meals, eating, bathing, and light housekeeping
• Nursing home coverage
• Helping with the cost of assisted living facilities
• Visiting nurse in the home or a certified nursing assistant
• Assistance with personal shopping needs
• Adult day care services
• Home modification
• Care coordination

Without a long-term care policy you could spend your savings rather quickly. So purchasing long-term care is important, but it can seem like a daunting task. It doesn’t have to be if you follow some easy steps.

1. Ask a family member/friend to help you if you are overwhelmed with the process.
2. Decide on which services are most important to have covered.
3. Take your time; don’t be pressured by anyone to make a quick decision.
4. Check your current insurance policy to see what is covered.
5. Check with at least 3 insurance companies about the long-term offerings.
6. Research the different plans available in your price range.
7. Get written copies of any policies you are considering and read them carefully.
8. Review everything one last time before signing on the dotted line.
9. Always pay your premiums with a check payable to a company not a person to prevent fraud.

Make the decision that is right for you and that will give you peace of mind.

Life Happens is a non-profit organization that can also explain Long-term Care coverage for you. Please check out their website here.

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