MSAA features the work of many talented artists affected by multiple sclerosis as part of our annual MSAA Art Showcase. Each month we share these artists’ inspiring stories and beautiful artwork with you as our Artist of the Month. This month, we celebrate Katy Maiolatesi as the January Artist of the Month. Katy is from Lansing, MI.
Continue readingTag Archives: living with MS
Ask the Expert – Spasticity
Featuring Barry A. Hendin, MD
MSAA’s Chief Medical Officer
Question: Does spasticity in MS ever improve on its own and what are the best treatments for this symptom?
Answer: First, it may help to define spasticity in simple terms. Spasticity is an increase in muscle tone due to an imbalance between excitatory and inhibitory influences on nerve flow along the motor pathways of the brain and spinal cord. Symptoms can vary from mild discomfort to severe pain and disability. Activities of daily living, quality of life, upper extremity function, and gait, can all be affected.
As with all MS symptomatology, spasticity can vary in intensity. It can improve or worsen, depending upon MS relapses, progression, or outside influences – including events, such as urinary tract infections. Fortunately, many interventions can help to reduce spasticity and improve comfort and function.
Continue readingEmbrace the Magic
‘Tis the season to savor moments, embrace traditions, and create lasting memories with loved ones. Explore festive activities, delve into cherished recipes, and discover the magic that makes the holidays truly special. From thoughtful gift ideas to mindful self-practices, there are many ways to maximize the joy and warmth of the holiday season.
Festive Traditions: Dive into the magic of the season by revisiting or creating new traditions. Whether it’s decorating the tree together, baking festive treats, or watching classic holiday movies, traditions strengthen the bonds of family and friends.
Continue readingABC’s Of Holidays
Holidays are so important because they are times when we can take a break from life’s regular hustle and bustle. During these times, we must abandon our usual routines and do something out of the ordinary. It is the best time of the year to indulge in laughter, fun, and delicious treats. Amid all the good things that come with holidays, here are the ABCs of holidays that are reminders for me to value life and not take things for granted.
Continue readingCelebrating Success and Seasonal Joy: Reflecting on Achievements Despite the Challenges
Reflecting on our achievements does not come naturally for most of us. The hustle and bustle of the holiday season, work, family, and other responsibilities typically take over. Have you ever felt like you were living on autopilot? I have. Sometimes, I get so caught up in my routine that I lose track of all I have accomplished during the year. It feels like I blinked, and suddenly, it is December, and another year has passed by. This holiday season, I want to reflect on the achievements and joyous moments I had in 2023.
Continue readingCelebrando el éxito y la alegría de la temporada: reflexionando sobre los logros a pesar de los desafíos
Para la mayoría de nosotros reflexionar sobre nuestros logros es algo que no hacemos con tanta frecuencia. El ajetreo de la temporada navideña, el trabajo, la familia y otras responsabilidades suelen tomar el control. ¿Alguna vez te has sentido como si estuvieras viviendo de forma automática? Yo sí. A veces, me dejo llevar tanto por mi rutina, que pierdo la noción de todo lo que he logrado durante el año. Se siente como si parpadeara y, de repente, es diciembre y ha pasado otro año. En estas fiestas, quiero reflexionar sobre los logros y los momentos alegres que tuve en el 2023.
Continue readingMaking the Most Is Not Doing the Most
The holidays can be a busy and stressful time for most of us. The list includes holiday parties, hosting guests, shopping, gift wrapping, traveling, and cooking. Especially when you have young children, you’re expected to deliver the magic of Christmas with every chance you get. Through my journey living with MS, since I was a young adult, I have learned that doing the most during the holidays is not making the most of the holidays. I have since limited my holiday commitments and traveling to a minimum. This does not mean that I don’t enjoy and love the season; instead, it means I make it manageable, which makes it all the more enjoyable for me.
Continue readingAlways Evolving
By Kate
Sure, I can tell you about how frustrating it is to be too fatigued to play with my kids outside or what it’s like to worry that the drink in my right hand might end up on the floor (or on me). I can tell you about my fears about being able to be the mother my kids deserve and what it feels like to forget key information when I’m speaking to someone at work. It’s a lot and it’s constant, but that’s not what I want to focus on. I’ve been diagnosed with MS for six years and since then I’ve had two children, moved out of state and back, gone through a divorce, and started a new job. My world has changed and so have I. There are so many things I’ve read about the dark sides of MS and I certainly don’t want to downplay those aspects in the least, but I do want to also draw attention to something I hadn’t expected upon diagnosis – I woke up.
Prioritizing Self-Care
By Stacie Prada
Each year I approach the holiday season with excitedly high hopes and an underlying worry for the season’s demands. I know I need to be even more attentive to my health than usual to best navigate the next couple of months. Yet most years I put commitments and other people ahead of my needs. It leads to overwhelm and exacerbates my MS fatigue.
Self-care is an individual decision and responsibility, and it’s within our control. So, what makes it so hard? Often, it’s the abundant needs of family, friends, profession, and self-imposed expectations competing with limited time, money, and energy to meet those needs. The demands of us and by us can be more than humanly possible to meet. So where do we draw the line?
Continue readingA Guide to Self-Care During the Holiday Season
Ahh…the holiday season! With its dazzling lights and festive cheer, the holidays can often bring a whirlwind of activities and expectations. Although it’s a joyous season, it can also bring forth chaos and stress. That’s why it’s crucial to prioritize self-care and ensure a harmonious and fulfilling celebration. Here are a few strategies to help you navigate the holiday season while keeping your well-being at the forefront:
Continue reading