Community Views: How Changing My Diet Helped Me Feel Better

Posted on August 30, 2021 by MultipleSclerosis.net

Paying close attention to what you eat is important if you live with multiple sclerosis (MS). Although there is no special “MS diet,” the foods you eat can make a big difference in your overall health. Your diet may also affect your energy level and your bowel and bladder function.¹

To learn more about how people with MS are working to improve their diet, we reached out to our Facebook community. We asked members, “Have you altered your diet? What has your experience been like?”

Keep in mind, of course, that everyone is different. There is no guarantee if you follow a particular diet, you will feel a certain way. These are just the experiences of 40 of our Facebook followers. Be sure to consult your doctor before making any major nutrition changes!

Sugar is out and fiber is in

A low-fat, high-fiber diet is important when you have MS. You should try to limit the amount of sugar and processed food you eat. And getting enough fluids is also important.^1,2

“I hardly eat fried foods anymore. I bake or air fry now and I limit pasta dishes and rice. I cut out sugary soda pops. Lost weight and feel lighter. I try to take probiotics also. Helps with digestion. I eat lots of homemade soups and salad. My body likes that.”

“Clean eating. No artificial or inflammatory foods/ingredients. No gluten/dairy. So far, so good.”

Staying at the right weight makes sense

People who live with MS should try to maintain a healthy weight, recommends the National Multiple Sclerosis Society. Obesity may increase the risk of other health conditions that can worsen a person’s MS.²

“I lost 10 pounds by eating less meat and more vegetables.”

“I know there’s a lot of negativity towards Keto but that’s what worked for me. I lost over 60 pounds in the course of 2 years (walking daily as well) and I had very low inflammation. I got off of it for about 2 years and am starting again because I felt so much better on it. I also did organic and grass-fed meats and eggs.”

Pass up the meat and try a nut butter

People with MS should focus on lean sources of protein and healthy fats. Experts recommend limiting intake of animal-based fats. This means cutting back on butter, whole milk, and meat, but it does not mean a ban on delicious foods.³

Try out some different kinds of fish. And include some nut-based fat sources like olive oil, avocado oil, and peanut or almond butter in your meal plan. They are a rich source of healthful omega-3s.³

“No salt, dairy, beef, processed food or processed sugars.”

“I have eliminated dairy and 90 percent gluten. Those made the biggest difference in how I felt overall. I have generally stayed away from processed foods. A family member ranches, so we get amazing meat through them, but we don’t eat a lot of meat anymore.”

Eat a rainbow of fruits and vegetables

Experts recommend that people with MS increase their intake of fruits and vegetables.^2,3

“I am limiting processed foods and processed carbs and my focus is on 3 to 5 servings of fruit and vegetables each day, and 2 should preferably be dark leafy vegetables. I eat blackberries, blueberries, strawberries, pistachios, and broccoli daily.”

“Vibrant fruits and veggies – as much color as I can get on my plate!”

“I eat a lot more fresh fruit and vegetables and more food that has no preservatives, is not fried, and is low in sodium and sugar. While I’m not 100 percent with this, I DEFINITELY feel a difference with the way I eat.”

Thank you to everyone who shared information about their experiences with multiple sclerosis and making changes in the diet. We appreciate your honesty and willingness to share.

References:

1. Diet and Nutrition. National Multiple Sclerosis Society. Available at https://www.nationalmssociety.org/Living-Well-With-MS/Diet-Exercise-Healthy-Behaviors/Diet-Nutrition?Accessed 8/2/2021.
2.Wellness for People with MS: What do we know about diet, exercise and mood and what do we still need to learn? National Multiple Sclerosis Society. Available at https://nmsscdn.azureedge.net/NationalMSSociety/media/MSNationalFiles/Brochures/WellnessMSSocietyforPeoplewMS.pdf. Accessed 8/2/2021.
3. Is there a multiple sclerosis diet? The Mayo Clinic. Available at https://www.mayoclinic.org/diseases-conditions/multiple-sclerosis/expert-answers/multiple-sclerosis-diet/faq-20057953. Accessed 8/2/2021.

Pumpkin Coffee Cake

Posted on August 27, 2021 by Melissa Young

I love fall baking. This cake is made with pumpkin puree and lots of spices. I also added in sour cream to add a bit more flavor and moistness to the coffee cake.

Adding streusel kicks it up a notch and tastes so delicious. This recipe will satisfy your cravings for fall while also making your kitchen smell amazing. Hands down scrumptious!

Ingredients

For the streusel:

1/2 cup light brown sugar
1/4 cup all-purpose flour
1/2 cup finely chopped pecans
1 teaspoon ground cinnamon
3 tablespoons unsalted butter, melted

For the cake:

2 cups all-purpose flour
1 teaspoon baking powder
1/2 teaspoon baking soda
1/2 teaspoon fine salt
1/2 teaspoon ground cinnamon
1/4 teaspoon ground ginger
1/4 teaspoon ground nutmeg
1/2 cup light brown sugar
1/2 cup granulated sugar
1 cup pumpkin puree
1/2 cup vegetable oil
4 ounces sour cream, at room temperature
¼ cup applesauce
2 large eggs

Directions

Preheat the oven to 350°F. Spray the bottom of an 8-inch square pan with nonstick cooking spray.

Make the streusel:

In a small bowl, combine all the streusel ingredients with a fork until crumbly.

Make the cake:

In a large bowl, stir together the flour, baking powder, baking soda, salt, cinnamon, ginger, nutmeg, brown sugar, and granulated sugar.
In a small bowl, stir together the pumpkin puree, oil, sour cream, applesauce, and eggs. Mix well.
Spoon half of the batter into the prepared pan. Sprinkle with half of the streusel. Spread the remaining batter over the top. Sprinkle with the remaining streusel.
Bake for 45 minutes or until a toothpick inserted in the center comes out clean.

Happy Baking

Identity, Humor, Intelligence, & Chronic Illness

Posted on August 20, 2021 by MSAA

By Stacie Prada

Living with a chronic illness that progresses and has no cure has made me hyper aware of how I view myself and others. Faced with potential physical disability and cognitive decline, I realized how much of my identity was based on what I can do, say and accomplish.

I remember my early years navigating acknowledging I had multiple sclerosis. The long list of symptoms and conditions that can result from MS lesions is frightening. Cognitive changes scared me. They can affect a person professionally, compromise analytical and problem-solving skills, and end a career. They often change personal relationships, and I wondered if they would change how I interact with people.

These scared me, and in that swirling jumble of symptoms, possibilities and impacts, I worried what it might mean for my personality. I worried it would change how people see me and how I see myself.

Would I lose my sense of humor and intelligence? Would my personality become something different? Would I like who I become?

It turns out I am becoming more serious and intentional, and I’m also keeping my quick-thoughts and silliness. MS integrated into my identity. It didn’t displace it. MS is a big part of my life, but so are all of the other aspects of my being.

I haven’t lost my sense of humor, but I have become clearer about why things make me laugh. Something I experience or observe may make me chuckle to myself, and whether I share it with the people around me depends on the situation and relationship. Anecdotes and observations on living with a chronic illness can ring true and boost connection with some, and they can make others uncomfortable. Sometimes a modification to how it’s told can make it relatable, and other times it’s worth waiting to share with a person who already understands.

Being silly can sometimes be seen as immature or flippant. Growing older, gaining confidence and learning every day helps me share my thoughts more and worry less about what people will think. If someone interprets me differently than I’d like, I’ve gotten better about not owning their opinion.

I’ve watched friends experience physical and cognitive impacts due to illness and aging. Searching for the right word to express their thoughts can take longer, but it’s also because the right word matters to them.

Intelligence is not the ability to retrieve a word or speak quickly. It’s understandable yet misguided to presume communication equals comprehension and intelligence. I’ve learned through the years and many friends that the ability to communicate or retrieve words have no relationship to a person’s intelligence or understanding of things.

When a person takes their time to find the word that accurately captures what they want to convey, I’m often rewarded with a perspective and insight I hadn’t anticipated. It encourages me to honor the person and the conversation by staying quiet, interested and unhurried.

Curiosity and not rushing a conversation are crucial. Not finishing a sentence when they’re searching for the word reaps rewards. I may think I know what they’re going to say, but often they surprise me with more depth, cleverness and humor than I’d anticipated.

If I could talk to the newly diagnosed me from 13 years ago, I would tell her this:
Living with chronic illness affects everything, but MS will integrate into your identity in a way that matches your personality. Your intelligence, humor and identity will evolve, but they will be what you make them. You’ll gain insight into a world that teaches you about others and yourself. The experience will make clear who you are and who you want to be in this life. Through all of it, you’ll still be you.

*Stacie Prada was diagnosed with RRMS in 2008 just shy of 38 years old. Her blog, “Keep Doing What You’re Doing” is a compilation of inspiration, exploration, and practical tips for living with Multiple Sclerosis while living a full, productive, and healthy life with a positive perspective. It includes musings on things that help her adapt, cope and rejoice in this adventure on earth. Please visit her at http://stacieprada.blogspot.com/

Funny, Not Funny

Posted on August 16, 2021 by MSAA

By Lauren Kovacs

OK so there is nothing funny about a chronic illness. Injecting a little bit of humor can go along the way. Don’t force it.

Yeah, the fire breathing dragon on my path to a decent night’s sleep is not funny. His blow torch breath on my arm for hours kinda sucks. But, maybe he can get a part on Game of Thrones instead of being part of my nightly nerve pain.

So my right leg identifies as a tree log. A very heavy log. It is my Barbie Leg. The Floppy Fish Foot is a special added MS gift.

If I can’t manually bend Barbie Leg, Floppy Fish Foot steps up and makes movement extra hard. It gives 110%. It really knows how to increase the difficulty.

I left many things behind when my boys became teens. Not so much in reality. I load my van for a trip with as much stuff as when my boys were little. Only now my bed rail has replaced the pack and play. My wheelchair replaced the stroller and protein powder pushed out the baby food.

Ah, to be young again. Wait… my special fork replaced baby spoons and my water bottle with a straw replaced sippy cups. At least I am accustomed to needing lots of stuff.

Try and find a wee bit of humor in things. Not everything is funny though. I spend many moments in frustration tears. Take something you deal with and turn it around. The back of my thighs are starting to burn a bit. Nothing big or painful yet. Getting ready to turn that around with humor.

Yes, my right leg is spastic, but I turned it into something silly. I can laugh most of the time. Plus I am finding people understand a Barbie leg better then spasticity. Make your descriptions as simple as possible for everyone. Your silly analogies can clarify things for people.

Add A Little Humor

Posted on August 13, 2021 by Angel Blair

Throughout life there are moments that call for certain emotions and behaviors as a way to react and cope with things. There are times that call for seriousness and focus, sadness, or frustration. But there are also times that call for humor and lightheartedness. These elements can help keep you going sometimes, especially through challenging periods. Seeking out humor is a task everyone should try daily.

Some of us are fortunate to have naturally funny and humorous characters as part of our day to day lives. My husband is one of these people and can make me laugh-especially in times where I don’t want to be amused, haha. He has a knack for it, a talent that comes so easy to find humor in almost any situation. I’m grateful for the humor he adds to my life each day, even when it’s not wanted. He knows in those moments where I become too serious or overly stressed, I can probably use a good laugh to break through nerves and tensions. And he’s usually right.

I know we can’t have humor and laughter 24/7, but I think it’s important to make room for it whenever possible. There are too many obstacles, traumas and tragedies that plague the world. Be it illness, loss, or some other type of devastation—we don’t know what the next moment will bring. But amidst this we can find light, hope, and humor to manage our feelings about what we can’t control. If humor can be a way to help cope with the unimaginable, then bring on the laughs. Because at the end of the day if we can control our reactions and emotions, why not add humor into the mix.

5 Years of Camaraderie and Community

Posted on August 11, 2021 by MSAA

Living with a chronic condition — such as multiple sclerosis — can feel isolating at times, particularly during a pandemic. Especially in this last year and half, we have all learned the value of connection with other people. One way that people affected by MS have managed to connect and create a sense of community for the last five years is through MSAA’s online peer forum, My MSAA Community.

My MSAA Community is a free, online peer-to-peer forum for members to share their MS experiences. The community is a safe space that allows users to post a question and get answers from members of the forum, share their MS journey, connect with others, and contribute to ongoing conversations.

For the past five years, members of the MS community have come to this online forum looking for advice and connection from someone living a similar experience. With more than 6,500 members and more than 16,000 posts, you can find:

Coping strategies for difficult MS symptoms
Tips on how to talk to your healthcare team
Discussion about different therapy options
Support for some of the more challenging aspects of living with MS
Fun stories, and more

Join My MSAA Community and help us celebrate five years of camaraderie and connection for people affected by multiple sclerosis.

Finding Joy in Life

Posted on August 9, 2021 by Selena Fisher

Do you ever find it difficult to find happiness in the midst of hard times? Even in the face of adversity, having a mental list of simple behaviors to try out every day may help you feel happier. You might find that doing something as easy as listening to music improves your mood and helps you on your journey to finding joy in life.

Whatever joy means to you, you may tap into it in surprisingly easy ways, even when it’s tough to remember what it’s like to be joyful.

So, here are 3 easy-to-implement suggestions for finding joy in life during challenging circumstances.

1. Find the things in life that make you happy, and then do them.

2. Always take a moment to express gratitude.

3. Stay connected to the good relationships you’ve established in life.

Remember friends, do what brings you joy. Demonstrate thankfulness. And stay connected to your relationships. You are amazing, and you can do this!

Luis Aparicio – August 2021 Artist of the Month

Posted on August 2, 2021 by John MSAA

Each year, we feature the work of artists affected by multiple sclerosis in our annual MSAA Art Showcase. We receive many wonderful submissions from across the country and are delighted to share the work of these artists and their inspirational stories with you, including highlighting one artist each month as our Artist of the Month. This month, we are proud to feature artist Luis Aparicio of Dallas, TX:

Luis Aparicio artwork entitled Play Harder

About the Artist – Luis Aparicio

Continue reading →

FOLLOW MSAA ON: