By: Meagan Freeman
As a mother of 5, I have always looked forward to that special time of year when my children head back to school! It was a long, hot summer this year, and I spent my days without the usual daytime break I always need during the school year. Summer can be incredibly difficult for parents with MS, and children are often left bored at home, looking for entertainment. Temperatures often hit the 90s-100s in my area, and on those very hot days I was left a virtual prisoner, trapped at home in the A/C with children who were not often pleased. Most MS patients require a certain amount of rest during the day, and noise can become a tremendous irritant. Without a break, we often become fatigued and emotionally spent.
My children returned to school early this year, on August 24th. My oldest left for college this year, and it was surreal to help him pack up his things and head out. Though I was saddened a bit, I also thought to myself with a twinge of guilt: “Check one off the list!” The first day back was chaotic, dragging exhausted children out of bed early and forcing them to dress, eat breakfast, and get out the door begrudgingly by 7:45 AM. I have found that planning ahead and organization are the keys to success with a large family, and I always spend the evenings preparing everything needed for the morning. Lunches and snacks are packed ahead of time, clothes are in piles according to child, and backpacks are in a neat line ready to be carried out. I have issues with memory loss at times, and I find that failure to plan ahead leads to disaster. I recommend using electronic devices to plan out calendars for the week, setting “alerts” for important times and events. After forgetting to pick children up on early dismissal days several times last year, I have learned to mark out the important pick up times well in advance.
We jumped in the car on that first day of school, everyone in new outfits and excitement in the air, and made our way around town to multiple schools, into new classrooms and new adventures. After the last child left the car, I drove home slowly, sipping my coffee with a sense of great relief. I walked in the door of my home, to a quiet and peaceful spot for the first time in months. I took a deep breath, and realized that at last, I had some free time for myself.
Through these yearly experiences, I have come to understand that I need time for rest and rejuvenation. It is not a luxury for me, but rather a medical necessity. Without a chance to “recharge the batteries,” we just don’t function well as mothers and fathers with MS. Though childcare can be incredibly expensive during the summer, I would advise all parents with MS to factor in some time to rest. Those precious quiet moments are exactly what the doctor ordered, and we should all begin to see rest as a medication or a treatment, something that our disease demands. Even if a friend or family member might give you a bit of respite and take the kids for a few hours occasionally, this would be of great benefit. We should all take a bit of time to care for ourselves, so that we might care for our families in the best possible way. Happy Back to School!
*Meagan Freeman was diagnosed with RRMS in 2009, at the age of 34, in the midst of her graduate education. She is a Family Nurse Practitioner in Northern California, and is raising her 6 children (ranging from 6–17 years of age) with her husband, Wayne. She has been involved in healthcare since the age of 19, working as an Emergency Medical Technician, an Emergency Room RN, and now a Nurse Practitioner. Writing has always been her passion, and she is now able to spend more time blogging and raising MS awareness. She guest blogs for Race to Erase MS, Modern Day MS, and now MSAA. Please visit her at: http://www.motherhoodandmultiplesclerosis.com.
